I am not completely sure what the best treatment is but there is a lot of research being done. I am currently in 3 different trials at Columbia Presbyterian Hospital. My treatments have been 12 rounds of 1000mg of soul-medrol infusions, high doses of prednisone pills, blood pressure medication and I tried cellcept which is an anti-rejection medication used by transplant recipients and donors. My body had an unusual reaction to the cellcept so I was only on it for a couple of days and had to stop.