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How is Interstitial Cystitis diagnosed?

See how Interstitial Cystitis is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Interstitial Cystitis

Interstitial Cystitis diagnosis
7 answers
Only one way for certain: Cystoscopy! The dr goes in & physically looks at your bladder to verify you have it.

Posted Apr 12, 2017 by Jerri 400
IC can be detected with a scope, to look for ulcers or inflammation. A hydrodistention measures bladder capacity (important to know, if your bladder is smaller, you may urinate more frequently. A potassium test is rather outdated, but potassium irritates the bladder. This procedure uses a catheter, potassium and a saline bag. They may ask how you feel. This test does not work for everyone. Seek a urologist or a pelvic pain specialist.

Posted Oct 17, 2017 by ash 600
IC is a difficult condition to diagnose because it looks very similar to a UTI and very often you will be treated for one even though your test is negative. This is when you have to be a self advocate and demand more testing; a lot of cases of IC take years to become fully diagnosed because patients get pushed around by the medical community thinking that IC is "rare" especially for younger women (I had symptoms since I was 7).
One diagnostic method was questionnaire and take medication to see if it helps; this tool was used by my gynecologist. Another was surgical, the cystoscopy with hydrodestension where they blow up your bladder and look for Hunner's ulcurs; this was done by a urologic surgeon. I have been monitored by a urologist and a gynecological urologist. Every time I have an appointment, I give a urine sample so that they can see if I have a UTI which may be causing my symptoms instead of IC.
Unfortunately, IC is something that they need to look at your bladder to get a diagnosis. Lab tests are not very helpful because IC is a condition that gives you problems but nothing should be wrong.

Posted Jun 10, 2018 by SaraLouise 2500
I was a Urologist who believed I had Interstitial Cystitis and performed a cystoscopy on me to confirm.

Posted Apr 11, 2021 by Shawna 1250
Translated from spanish Improve translation
With a cystoscopy, ideal with epidural anesthesia or general anesthesia, in order to distend the bladder, a thing which is not possible when the patient is awake; to distend the bladder lesions appear which cannot be seen with the naked eye, petechiae and ulcers of Hunner, these lesions confirm the diagnosis.
Although some urologists prefer to include the CI
under the name of painful bladder syndrome to include other symptoms that are within the box of painful bladder, but they are not as intense.

Also usually do a urodynamics to know the storage capacity of urine from the bladder and to evaluate the detrusor muscle and its degree of hyperactivity.

Posted Sep 2, 2017 by Ana 3358
Translated from portuguese Improve translation
The diagnosis is by exclusion. No there is still no examination is capable of diagnosing interstitial cystitis.

Posted Sep 30, 2017 by Taisa 400
Translated from spanish Improve translation
In my case it was by the symptoms described and because I did a hidroextension and there saw my ulcers in the bladder.

Posted Nov 23, 2017 by LPilar 2500

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