It's going to be okay. Find a support group. Find a network of people that understand. Make sure you listen to your Dr. Tell them when things get tough.
You are not alone with this condition. There are other people out there who know what it is like to feel different from everybody else. There are people you can talk to who can understand how you are feeling.
You can have a normal physical / emotional relationship with a partner though it can take a lot of courage and trust to begin with.
Fertility treatments are available for both male and female patients with a high success rate.
Always learn more about Kallmann's syndrome. Ask around and ask your doctors about any on going research. Learn all you can about Kallmann's syndrome and what health effects you will have in the short term and long term
Find a reliable treatment that works for you. Get your hormone levels checked at least once a year to make sure your treatment is working. Do not delay in dealing with any emotional issues, but do not let KS define you.
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).
My first 36 years of life without the diagnosis were not so bad, however, I develo...
Short version to start with.....
Born in 1969.
Went to Bradford University to study Biomedical Sciences
Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years.
Diagnosed at 23 at Royal ...
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study. This study is being run through the Pennsylvania State University De...