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Which advice would you give to someone who has just been diagnosed with Kallmann Syndrome?

See some advice from people with experience in Kallmann Syndrome to people who have just been diagnosed with Kallmann Syndrome

Kallmann Syndrome advice
6 answers
It's going to be okay. Find a support group. Find a network of people that understand. Make sure you listen to your Dr. Tell them when things get tough.

Posted Feb 22, 2017 by Kelly 1000
You are not alone with this condition. There are other people out there who know what it is like to feel different from everybody else. There are people you can talk to who can understand how you are feeling.

You can have a normal physical / emotional relationship with a partner though it can take a lot of courage and trust to begin with.

Fertility treatments are available for both male and female patients with a high success rate.

It is not your fault you have this condition.

Posted Feb 22, 2017 by Neil Smith 4395
Research!

Posted Mar 10, 2017 by Miriam 1050
To see an endochrinologist, do the treatment, and talk to a psycogical figure for help

Posted Jun 11, 2017 by Remo 2050
Always learn more about Kallmann's syndrome. Ask around and ask your doctors about any on going research. Learn all you can about Kallmann's syndrome and what health effects you will have in the short term and long term

Posted Aug 4, 2017 by Nick K.D Chaleunphone 1770
Find a reliable treatment that works for you. Get your hormone levels checked at least once a year to make sure your treatment is working. Do not delay in dealing with any emotional issues, but do not let KS define you.

Posted Dec 1, 2017 by Aaron Davis 4150

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World map of Kallmann Syndrome

Find people with Kallmann Syndrome through the map. Connect with them and share experiences. Join the Kallmann Syndrome community.

Stories of Kallmann Syndrome

KALLMANN SYNDROME STORIES
Kallmann Syndrome stories
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
Kallmann Syndrome stories
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).  My first 36 years of life without the diagnosis were not so bad, however, I develo...
Kallmann Syndrome stories
Short version to start with..... Born in 1969. Went to Bradford University to study Biomedical Sciences Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years. Diagnosed at 23 at Royal ...
Kallmann Syndrome stories
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
Kallmann Syndrome stories
I have a Portuguese blog where I talked about my syndrome and my desire to become mom.  Is called https://cantinhodossmurfs.wordpress.com

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Kallmann Syndrome forum

KALLMANN SYNDROME FORUM
Kallmann Syndrome forum
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study.  This study is being run through the Pennsylvania State University De...

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