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How do I know if I have Kallmann Syndrome?

What signs or symptoms may make you suspect you may have Kallmann Syndrome. People who have experience in Kallmann Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Kallmann Syndrome?
3 answers
If you are considered a late bloomer, you did not have reached puberty as your peers, you should go see your doctor and ask him for testosteron blood test. Especially if you can't smell.

Posted Jun 11, 2017 by Remo 2050
Anosmia, lack of sense of smell.

Not starting puberty by the age of 16 in girls and 17 in boys or not completing puberty within 5 years of starting.

Puberty is started with testicular growth in boys or menstrual bleeding in girls.

Low levels of testosterone or oestrogen and low levels of the pituitary hormones LH and FSH.

There are some associated symptoms that can occur in some cases, but not all cases of Kallmann syndrome:

Hearing problems
Mirror movements of the hands
Fused fingers
Cleft lip / palate
Missing teeth
Missing kidney
Skeletal problems such as scoliosis.
Undescended testicles.

Posted Nov 30, 2017 by Neil Smith 4395
A person will frequently seek treatment when they are passed the age of puberty and have not experienced any pubescent development. A doctor will run tests, that include an exam, an e-ray of the hands, a CT scan, and blood tests.

Posted Dec 5, 2017 by Aaron Davis 4150

Do I have Kallmann Syndrome?

Kallmann Syndrome life expectancy

What is the life expectancy of someone with Kallmann Syndrome?

8 answers
Celebrities with Kallmann Syndrome

Celebrities with Kallmann Syndrome

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Is Kallmann Syndrome hereditary?

Is Kallmann Syndrome hereditary?

5 answers
Is Kallmann Syndrome contagious?

Is Kallmann Syndrome contagious?

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ICD9 and ICD10 codes of Kallmann Syndrome

ICD10 code of Kallmann Syndrome and ICD9 code

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Natural treatment of Kallmann Syndrome

Is there any natural treatment for Kallmann Syndrome?

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World map of Kallmann Syndrome

Find people with Kallmann Syndrome through the map. Connect with them and share experiences. Join the Kallmann Syndrome community.

Stories of Kallmann Syndrome

KALLMANN SYNDROME STORIES
Kallmann Syndrome stories
What can you say my story of how I was born as an http://en.wikipedia.org/wiki/Intersex/DSD person and living my life is as unique as the next person. I’m no different from anyone else, other than being born with an Intersex/ DSD (http://en.wikipe...
Kallmann Syndrome stories
My name is Ivan. I'm a clinical psychologist. I'm 40 years old and I have Kallman's syndrome. Unfortunately, it was diagnosed only a couple of years ago (in 2009).  My first 36 years of life without the diagnosis were not so bad, however, I develo...
Kallmann Syndrome stories
Short version to start with..... Born in 1969. Went to Bradford University to study Biomedical Sciences Was dismissed as a "late bloomer" or "late starter" every time I went to the doctor throughout my teenage years. Diagnosed at 23 at Royal ...
Kallmann Syndrome stories
When I was little and found out my Syndrome was a confused time, how doctors told me what my life will be and how could I live when been a grown up person. Now that I am 40 and knowing people that been there like me and talk about our story I can say...
Kallmann Syndrome stories
I have a Portuguese blog where I talked about my syndrome and my desire to become mom.  Is called https://cantinhodossmurfs.wordpress.com

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Kallmann Syndrome forum

KALLMANN SYNDROME FORUM
Kallmann Syndrome forum
We are currently seeking research participants who have been diagnosed with idiopathic hypogonadotropic hypogonadism (IHH), including Kallmann Syndrome (KS), for such a study.  This study is being run through the Pennsylvania State University De...

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