2. Kernicterus
3. Interviews

Mstanek's interview

How did all start?

My son was a micro-preemi (born at 25 weeks gestation) He was placed under the bili light a few times in his first weeks of life but also had respiratory challenges. We were told his athetosis was due to hypoxia for years. We didn't even know kernicterus existed until we saw Cincinnati Children's Hospital movement disorder clinic physicians.

Do you already have a diagnosis? How long did it take you to get it?

13 years and 1.5 years to confirm it.

For what medical specialties have you been treated? What has been the most useful specialty for your?

Pediatric Neurology (movement disorders)

What has been the most useful thing for you so far?

DBS

What have been your biggest difficulties?

Travelling 500 miles for treatment