Celebrities with Lichen Sclerosus

I am not aware of any at this time

none that we know of.

Unknown at this time.

I am unaware of anyone coming forward.

As far as we know there are no celebrities with LS.

No one of notoriety has come forth. So to bring awareness out is very very difficult. Why would they want to publically admit they have pain, and burning and itching between their legs, that is hurt like everything to urinate or have a bowel movement, that they are limited having intercourse. Would they come forward and say they do not feel like a complete woman, that their labia is fused together and their anatomy no longer looks natural. That scars may grow over the clitoral hood.As much as I pray we could get a popular spokesperson I do not see it happening.

What a shame, they could highly raise awareness of this awful condition!

I believe sooner than later celebrities with Lichen Sclerosus will speak out. I was an aspiring actress and professional dancer until my auto immunity began eating away at my self esteem and undiagnosed chronic illnesses. I have vowed to speak out and create Lichen Sclerosus awareness content and advocacy and have been reached out to by all sorts of people men and women that would like to come out to the public but, do not feel supported enough at the moment.

If people would share and tag Lichen Sclerosus content just as much as they are willing to share other publicly supported causes such as breast cancer awareness for instance... the mission would be well on it’s way to getting the media coverage, education, funding, research, support etc. that it all well deserves to chase a cure

I’m not famous as in a celebrity star we see on TV or whatever. However I suffer from Lichen Sclerosis which is so rare it makes me famous? I guess. I was just diagnosed about 1 month ago. And therapy doing well. I’m using Clobetasol, Ketoconazle, and oral Fluconazole. Since this disease has so little carriers or ones who want to be public, I would love to be a spokesperson!! Medical people, drug reps, doctors, teachers whoever I will have be your famous!! I want to be others supportive network! [email protected]

I am not a celebrity, I am an 84 year old lady who has been suffering the absolute agony of lichen sclerosis for a long time and have felt suicidal because of all the problems it causes.
I can no longer stand underwear as it aggravates what is already an untenable discomfort. I have to wear skirts rather than my preferred trousers and it's cold and miserable.
It hurts to urinate and attempt to dry myself after this procedure as it is so sore and itchy and almost impossible to not want to rub it, knowing this will exacerbate the problem.
I was told the only hope is to have my vulva sealed up, leaving just an area to urinate from.
I have contacted the surgeons secretary to plead for this procedure, although I feel for my mental state, as this is my womanhood that I should be losing, but that is how desperate this dreadful disease makes me feel,. Suicidally depressed!
I can tolerate pain, but this is chronic and constant.
I have tried coconut oil, and prescribed medication but I get no relief from the symptoms.
I am truly desperate for relief from this nightmare as I also have osteoporosis in my back, hips and knees.
Tears are never far away...please help.
Thank you
Sheila Stokes ms.