- Lipedema
- Interviews
Elyce's interview
How did all start?
Fat pads growing on inside of knees. Causing pants to be to tight.
Do you already have a diagnosis? How long did it take you to get it?
Yes, two months and many tests and several doctors.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Family doctor
Vascular doctor
Cardiologist
Blood work
Veins ultrasound on legs
Ultrasound on heart
Everything was good
Cardiologist knew what lipedema was and diagnosed me. But he does not know how to treat it so I did not stay with him
What has been the most useful thing for you so far?
Change diet
Self Massage
What have been your biggest difficulties?
Can’t afford health care insurance or health care for the disease
I’m on my own trying to help myself
How has your social and family environment reacted? Have your social or family relationships changed?
They are sorry I’m dealing with it
Nothing changed
What things have you stopped doing?
Stopped eating all sugars except a rare cheat every once in a while
Stopped eating all processed food
What do you think about the future?
I am scared my legs will continue to get worse and it will affect my job and maybe eventually my ability to walk
So far, which years have been the best years in your life? What have you done during them?
Difficult question to answer so I’m not going to
What would you like to do if you didn’t have your condition?
Use my money to enjoy life instead of on medical bills
If you had to describe your life in a sentence, what would it be?
I’m tired of struggling
Finally, what advice would you give to a person in a similar situation?
Take care of themselves and eat very well
