Vickisticki's interview
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How did all start?
1982
Do you already have a diagnosis? How long did it take you to get it?
Doctors said I had it when I was born but dna blood was at last taken and confirmed marfans in 2015
For what medical specialties have you been treated? What has been the most useful specialty for your?
I'm seen for my heart. Eyes and nowe I see someone about my bones buy none help for me
What has been the most useful thing for you so far?
My kids
What have been your biggest difficulties?
Living with my mum and siblins
How has your social and family environment reacted? Have your social or family relationships changed?
I don't have family. It's just me and kids with friends
What things have you stopped doing?
Speaking to those who hurt me
What do you think about the future?
For my kids I hope a bright future and a cure for marfans so my babies and others don't go tho life like me and loads of other marfans. For me I can't see life getting better at all iv always got a big black painful cloud over me
So far, which years have been the best years in your life? What have you done during them?
1999.2002.2004. 2005 and 2008. When my baby's was born
What would you like to do if you didn’t have your condition?
Work as a midwife to help other mums or in a old people's home to help them and show them I care too
If you had to describe your life in a sentence, what would it be?
Blarrrr
Finally, what advice would you give to a person in a similar situation?
Don't let marfans win. We are better then it. And marfans down own us. We own marfans live your life
