Help us to help more people
  2. Moebius Syndrome
  3. Stories

A Moebius Syndrome story

Aug 6, 2016

Moebius Syndrome
My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have children or grandchildren with this disorder.  I have done extensive research and I have a deep understanding of it.  I may be in a position of raising my grandson so I just want to connect with others living with this condition.

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Moebius Syndrome and depression

Moebius Syndrome and depression
History of Moebius Syndrome

What is the history of Moebius Syndrome?
Prevalence of Moebius Syndrome

What is the prevalence of Moebius Syndrome?
Living with Moebius Syndrome

Living with Moebius Syndrome. How to live with Moebius Syndrome?
Is Moebius Syndrome contagious?

Is Moebius Syndrome contagious?
What is Moebius Syndrome

What is Moebius Syndrome
Moebius Syndrome sports

Is it advisable to do exercise when affected by Moebius Syndrome? Whic...
Moebius Syndrome symptoms

Which are the symptoms of Moebius Syndrome?