World map of Multiple Endocrine Neoplasia


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Multiple Endocrine Neoplasia stories


MEN2A


I am 39 with a loving husband and two young kids and unfortunately MEN2A.  I was diagnosed in the fall of 2015.  I had recurrent hyperparathyroidism that I couldn't get any doctor to take seriously despite being a physician myself.  I ...

Views: 581 Jan 18, 2016, 12:00 AM by Mary

ELEY FAMILY


I am the caregiver of my 4 family members who suffer from this disease. My husband and our 3 daughters were diagnosed in 2013.  Their treatment is in our hometown of St. Louis, MO.  It spins my mind how this disease starts so simple but is ...

Views: 576 by Amanda

MEN2A AND AN ORGANISATION


I was discovered to have MEN2a (c634) in 2000 after surviving a rather large and active phaeochromocytoma.  Subsequently I was offered genetic testing and was then diagnosed with medullary thyroid cancer - my thyroid was removed.  My son (t...

Views: 485 Apr 28, 2016, 5:32 AM by Jo

HERITAGE


Views: 238 Feb 21, 2018, 12:44 PM by Lou

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