Heritage

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In April of 2016, My mother died right after she had surgery for a Meckles diverticulum and developed 2 blockages as she couldn’t ever quit having diarrhea and vomiting post surgery which lead to weakness and a diagnosis of Zollinger-Ellison. We never knew. In May i began having recurring diarrhea and in began to worsen. My gastrins were checked and i was put through a battery of fecal stool studies and blood tests, upper and lower GI, tested for celiac, food allergies, sleep apnea, and RA. Again everything coming back negative. Iv has anxiety and depresssion my whole life but never an issue with diarrhea. For to the point my diarrhea was about five hours every morning and sometimes in the middle of the night with me even knowing. Every doctor wanted to say IBS with diarrhea. Had my gallbladder removed. Still intractable duarrhea with a bone crushing fatigue and flu like symptoms that are very seldom not present. Went from never napping to requiring a nap every day. Can’t work cause i can’t stay out of the bathroom. Changed PCP and the new one couldn’t find any evidence of my mom’s diagnosis of Zollinger-Ellison in the system. The doctor hadn’t put it in her chart! So she thought i was a nut case. Happened that my husband had the same surgeon for his gallbladder as my mom for her Meckels and she looked in my mom’s chart and told me to tell my PCP to look at my MOMs labs and get me and endocrinologist referral ASAP. Endocrinologist told me point blank diarrhea doesn’t happen at night without control! He knew immediately i had MEN and saw me within 24 hours of my phone call (usually takes 3-6months). It took me two years to get this referral! Now waiting on my endo labs to come back to get more definitive results. At least I’m not crazy!