Positive mental attitude
Symptoms started in 2013
It's very hard sometimes
We received superb help from our hospice
Working out and building/keeping muscles, staying fit helps
So unfair that my wifes life was cut so short by this disease. We did not enjoy a single day of retirement.
Help from family and friends
2 years ago was driving grandkids around, now i can't leave my house by myself, use a walker, frequent falls, feel like room is always spinning, need help getting into a vehicle
2 years ago was driving grandkids around, now i can't leave my house by myself, use a walker, frequent falls, feel like room is always spinning, need help getting into a vehicle
In the past year I have met 5 MSA patients / families
cold laser therapy
Stationary bicycle
Going to the senior daycare center for seniors
Começar usar Canabis
Join the online MSA support group http://groups.yahoo.com/group/shydrager
Eating smaller frequent meals and fruit rather than 3 big meals.
My walker help from spouse and children
The support of my family, knowing I'm not going thru this alone.
The love of my spouse and family
Lee Silverman loudness speech therapy
Palliative care team
No more suffering
Exercise
My custom walk in jacuzzi bath tub
Very supportive spouse.
Losing weight made it easier to get around.
Adjusting to Limitations
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Exercising 30 minutes a day either on the treadmill, rower or the recumbent bike, and I add sit ups and dumb bells to the regiment.I have to watch myself so I don't over do it.
oxygen
Having my C-pap well catered for my specific needs and a comfortable nasal mask allow me to sleep really well
Physical and speech therapy
I still keep up to date with relevant info & I'm happy to pass this on.
Use THE wheelchair when you body says it
Our very motivating & inspirational Exercise Physiologist & PD dancercise instructor....
Currently enjoying singing familiar songs. Can hardly talk but can get some words out with familiar songs.
The invention of computers and Google, which keep me connected to the world.
Going to my local R.A.O.B. G.L.E. Lodges they have known me for years and are helping me enjoy myself with good friend, some of which have known me for 40years plus.
My friends, ready to ignore my taped up eyes and just enjoy the day.
Daily exercise even when I feel bad.
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My loving family
Movement Disorder Doctor
Strong faith in God to help me through the journey.
Be active...in any way possible. Stretch...do forms of physical therapy. This will help in so many ways.
Approval of novel drugs or off-label uses of known drugs could make a big difference in quality of life.
That I was very good and kind to my mom in her hard and long battle against the disease
love and support from daughters family and friends
The psychiatrist and therapist
I have a great medical team.