See how Muscular dystrophy is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Muscular dystrophy
My daughter was diagnosed with a rare and severe form of congenital muscular dystrophy at 3 years old, shes now 7 years, old in 4 years shes rapidly progressed with her condition, we do not know of anyone with the same condition for her to communic...
At birth when I had breathing problems, I was moved to the NICU. I was diagnosed with two other diseases before we received a correct diagnose at the University of Iowa after a muscle biopsy at age 10. I visit a neuromuscular specialist in Des...
Hi
So... I have lived with Nemaline Myopathy for 17 years. I have a tracheostomy, full time ventilation, spinal rods to correct a scoliosis and 24 hour care. I previously had a gastrostomy but I have since had it removed.
I lead a normal, reasona...