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Which advice would you give to someone who has just been diagnosed with Myasthenia Gravis?

See some advice from people with experience in Myasthenia Gravis to people who have just been diagnosed with Myasthenia Gravis

Myasthenia Gravis advice
10 answers
Get information, check and recheck instructions, get second opinions, must feel comfortable with your doctor, avoid stress, rest a lot, early thymectomy.

Posted Mar 12, 2017 by Ara Eliana 1145
The beginning is the worst until you get your medication dosage figured out. Be strong it will get better.

Posted May 24, 2017 by Gary 1500
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That you follow to the letter your treatment and do not leave it for any reason that is not self-medicate

Posted Mar 20, 2017 by 1150
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Have patience because at the beginning it is not easy, not to isolate yourself, seek out the groups miastenico in the social network, if you need to seek psychological help

Posted May 24, 2017 by Meire Stella 1000
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I know how difficult it is to diagnosis in the beginning more slowly, and pasciencia everything is going into place and new way to lead the life we will begin to learn.

Posted May 24, 2017 by Lilian Silva Santos 1000
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Have faith,have hope,seek your family, seek professional to acomoanhar and has relation of confidence. This dai ja are 50 % of assertiveness. The more you will if adapitando and will this secure or safe, and will this om other eyes.

Posted Sep 13, 2017 by Paulo de Tarso c carvalho 1500
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Do not sit back!
Look for the best treatment possible.

Posted Sep 13, 2017 by Lua 3536
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What I have learned with Myasthenia Gravis is that the more difficult and bad the situation may seem, everything passes.

Posted Sep 13, 2017 by Renata 4550
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Be calm and hope. Is there a treatment and the possibility of remission without sequelae. Trust in your doctor.

Posted Sep 13, 2017 by Monique 1500
Translated from spanish Improve translation
Forces and want to fight because you can be well

Posted Sep 30, 2017 by Marcela 900

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Stories of Myasthenia Gravis

MYASTHENIA GRAVIS STORIES
Myasthenia Gravis stories
    MY MYASTHENIA GRAVIS STORY                                                                        By Robert Cribbs                                 self is rare symptom in MG. The doctors sa...
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I was dianogned at the age of 12 in 1989 at Kaiser in Fonatana, Ca, there first patient I believe and I was dianosged withthin weeks of going by 2 new doctor's right out of school, Dr.Wu and Dr. B leong, which still works there and has treated my old...
Myasthenia Gravis stories
sept 99 woke up with dbl vision, over the next 3 months progressed to generalised mg level 3 . put on mestinon ,usless, 6 months latter crises in hospital , ivig started prednisone at 75 mg /eod. over the next few months seveal more ivig breathing st...
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A finales del año 2008, pacientes, familiares, amigos y entre otros interesados en el tema de la MIASTENIA, deciden reunirse y formar una asociación, con el objetivo de apoyar y prestar ayuda a los personas con Miasténia en todos los aspectos de l...
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i am a single mom of three with mg. I have no backup help accept my kids and that's ok. I am learning to accept that I have a serious disease and that I need to be more adaptive to change. That's a hard task. So if you need a lift, and if you are dow...

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