Help us to help more people
  2. Parry-Romberg syndrome / Progressive hemifacial atrophy
  3. Advice
Family and friends support. They are my anchor.
by Anabel
My boyfriend who is always there for me and cares a lot about my feelings
by Rara
Going into the music and acting
by Esmeralda
The support on the prs Facebook group, seeing pictures and speaking to others in group.
by Rachel
I found make up helped a bit because it changed you alittle buy if you have a more severe case, It will only help with the pigmentation
by India
Meeting other PRS patients.
by Jennifer
Meeting other PRS patients.
by Jennifer
Getting older
by NightDriver
APAP/CPAP Therapy for moderately severe Sleep Apnea. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Keeping a good balance between my professionnal, academic and social life
by PsychedAlex
Ortognatic surgery on 2014 gave me more confidence.
by Anabel
Relaxing not tacking things to serious
by Rara
Playing instruments
by Esmeralda
Becoming open enough to discuss disease with people and Not getting upset when confronted. Essentially maturing over time and embracing the disease as part of me.
by Rachel
Living my life a full as possible without interruption from PRS
by Jennifer
Living my life a full as possible without interruption from PRS
by Jennifer
Good understanding sugeon
by NightDriver
Meeting others within the craniofacial community who I can relate to in more ways than one. ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Travel at every opportunity, go out of my boundaries, think and create outside the box
by PsychedAlex
Looking forward to see a plastic surgeon to continue treatment.
by Anabel
Travelling - it makes me forget the disease
by Rara
Joining clubs
by Esmeralda
A very supportive spouse and sharing knowledge and experience with loved ones.
by Rachel
Choosing to NOT have any surgeries unless they become medically necessary
by Jennifer
Choosing to NOT have any surgeries unless they become medically necessary
by Jennifer
Loving family
by NightDriver
Advocating for the cause of craniofacial differences and involving EVERYONE in these efforts. We must raise awareness and enact change TOGETHER! ❤
by Cynthia Murphy- Craniofacial Awareness Advocate
Make a joke about situations that causes discomfort.
by PsychedAlex