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Is it easy to find a partner and/or maintain relationship when you have Pityriasis Rubra Pilaris?

People with experience in Pityriasis Rubra Pilaris give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Pityriasis Rubra Pilaris. What are the possible difficulties in having a relationship?

Couple and Pityriasis Rubra Pilaris

Is it easy to find a partner and/or maintain a relationship when you have Pityriasis Rubra Pilaris?


Living with a chronic skin condition like Pityriasis Rubra Pilaris (PRP) can present unique challenges in various aspects of life, including relationships. While it is important to remember that every individual's experience is different, it is possible to find a partner and maintain a fulfilling relationship even with PRP.



Understanding Pityriasis Rubra Pilaris


Pityriasis Rubra Pilaris is a rare and chronic skin disorder characterized by reddish-orange scaly patches, follicular plugging, and thickening of the skin. It can affect different parts of the body, including the scalp, face, hands, feet, and torso. The condition can cause physical discomfort, self-consciousness, and emotional distress due to its visible symptoms.



Self-Acceptance and Confidence


Self-acceptance and confidence play crucial roles in finding and maintaining a healthy relationship. It is important to remember that PRP does not define you as a person. Embracing your condition and accepting yourself as you are can help build self-confidence, which is attractive to potential partners.



Open Communication


Open communication is key when it comes to discussing your condition with a potential partner. It is important to be honest and transparent about your PRP, explaining what it is, how it affects you, and any limitations or challenges it may present. Sharing this information early on can help build trust and understanding in the relationship.



Education and Awareness


Educating your partner about PRP can help them understand the condition better. Provide them with reliable resources or accompany them to doctor's appointments to learn more about the condition together. This can foster empathy and support, creating a stronger foundation for the relationship.



Supportive Partner


When seeking a partner, look for someone who is supportive and understanding. A compassionate partner will be willing to learn about your condition, offer emotional support, and help you navigate any challenges that may arise. They should be accepting of your physical appearance and willing to adapt to any necessary lifestyle changes.



Building a Strong Relationship


While PRP may present certain challenges, it does not mean that a fulfilling relationship is impossible. Focus on building a strong foundation based on trust, respect, and shared values. Engage in activities that you both enjoy and create opportunities for open communication and emotional connection.



Seeking Support


Living with PRP can be emotionally challenging at times. It is important to seek support from friends, family, or support groups who understand your condition. Connecting with others who have similar experiences can provide a sense of belonging and help you navigate the ups and downs of living with PRP.



Conclusion


While living with Pityriasis Rubra Pilaris may present unique challenges, it is possible to find a partner and maintain a fulfilling relationship. Embracing self-acceptance, open communication, education, and seeking a supportive partner are key factors in building a strong and loving relationship. Remember, you are more than your skin condition, and with the right person, love and understanding can overcome any obstacles.


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World map of Pityriasis Rubra Pilaris

Find people with Pityriasis Rubra Pilaris through the map. Connect with them and share experiences. Join the Pityriasis Rubra Pilaris community.

Stories of Pityriasis Rubra Pilaris

PITYRIASIS RUBRA PILARIS STORIES
Pityriasis Rubra Pilaris stories
  My name is Scott and I’m 42 years old.  I live in SE Michigan and have most of my life.  I have had PRP on my hands and feet for as long as I can remember.  It was not diagnosed until I was 14 and needed stitches on my hand.  The ER doc not...
Pityriasis Rubra Pilaris stories
Affecting elbows, knees and occasionally patches appearing elsewhere.  Haven't found a treatment that works so just take general care of skin.  
Pityriasis Rubra Pilaris stories
MY PRP Story is on my blog at : http://kevsprp.blogspot.co.uk/
Pityriasis Rubra Pilaris stories
first little lesion in early December by late January I was full on "red man".  Now on Enbrel with methotrexate and am visibly better I'm now a lovely shade of rosy pink with some newly appearing white spots. I believe I am getting better and there ...
Pityriasis Rubra Pilaris stories
I got PRP when I was 4-6 months, but first diagnosed when I was 13 years. Now I am old and have never had periods without PRP.

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Pityriasis Rubra Pilaris forum

PITYRIASIS RUBRA PILARIS FORUM
Pityriasis Rubra Pilaris forum
I would like to connect with others who have had PRP that began when they were baby

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