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How is POEMS syndrome diagnosed?
See how POEMS syndrome is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of POEMS syndrome
Poems is an acronym for 5 symptoms. You can have some or all but must have the p, polyneuroparhy in order to confirm poems. Tests will look for polyneuopathy, swelling of organs, bone lesions, m protein and irregular skin. A test looking at Vegf levels may also help determine whether you have poems syndrome.
Posted May 17, 2017 by Rosemary 1000
It is often misdiagnosed beforehand as CIDP (Chronic Inflammatory Demyelinating Polyneuropathy).
Not many neurologists are even aware about POEMS, and there are only a few hundred of us in the world.
Please see the attached file with lots of info as to how to diagnose. I'm actually under a haematologist and a neurologist.
Detailed blood tests, a VegF blood test, a bone marrow biopsy, and sometimes a PET scan are standard.
Not many neurologists are even aware about POEMS, and there are only a few hundred of us in the world.
Please see the attached file with lots of info as to how to diagnose. I'm actually under a haematologist and a neurologist.
Detailed blood tests, a VegF blood test, a bone marrow biopsy, and sometimes a PET scan are standard.
Posted May 18, 2017 by Naomi 1150
