Help us to help more people
  2. Primary Orthostatic Tremor
  3. Advice
high doses of Vit B2 and magnesium
by Marcie
To know what I have / savoir ce que j'ai
by CLAUDE-ANNE
walking
by Danielle
planning day, and limiting errands, not all in same day.
by Linda Morrison
Accepting that I have a life-changing disease.
by Wendy Luba
100mg Vitamin D daily plus magnesium
by Julie Herron
clonozapam
by annette morgan
Finally finding the name for my shaky legs!
by Ramona
I've become absolutely ace at scanning a room for somewhere to sit or lean!! My husband has also become good at finding me somewhere to sit without making a big thing of it.
by Lucy
friends with OT
by nicola rathman
Gabapentin has greatly improved my tremor
by Sheila-Merle Johnson
Neuronton
by Craig Miller
Accepting that I need to plan ahead and avoid circumstances that would result in difficulties for me and others.
by Glenn Hammonds
Walking
by margaret oliver
trouvez la cause exacte du TOP
by Chantal Cote
L'identification de ma maladie après une errance de plusieurs années (2006-2013)
by Michelle Lorin Janod
Getting enough rest.
by Sharon Mathews
exersises in pool and walking
by Carole
de ne plus être seule avec cette maladie
by Ida
The definitive diagnosis and an expert neurologist specializing in motion disorders.
by Betty Frable
1 mg klonopin daily
by Anonymous
Rest
by Linda
Finding out that I am not alone helped me feel less frustrated with my limitations of the normal every day activities
by Sylvia G
Finding others online who have OT and understand
by Sue
Attending POT Conference in Omaha in 2014
by Nelda
My walker has been a God send ... I joke that I have bought my own chair ! But seriously so handy with the steady sturdy seat
by Joanna
avoir des amis atteints de TOP pour pouvoir échanger
by Maryse
Clonazepam
by Daphne
Cell food by nu science has helped chronic fatigue gotten rid of many symptoms
by Josette
Medication - Clonazepam
by Celia
Getting a Rollator
by Cindy Nilsen
Clonazepam 0.5 twice daily moderately helps
by Kim
Medication has slowed down the tremors, yet they still exist after a fewminutes
by POTOctMoon
gluten, wheat, dairy and sugar free diet
by Marcie
to be not alone with this rared disease / ne plus être seule avec cette maladie rare
by CLAUDE-ANNE
better thinking
by Danielle
stool in kitchen
by Linda Morrison
Learning to adjust my lifestyle.
by Wendy Luba
Exercise like walking swimming and cycling
by Julie Herron
moving to a bungalow
by annette morgan
Clonazepam helps me sleep better.
by Ramona
A glass of wine really really helps control the tremors. But I am very careful to not have too many!!
by Lucy
supportive family
by nicola rathman
Exercise
by Sheila-Merle Johnson
Wine
by Craig Miller
Making sure that I have a shower stool available when I travel.
by Glenn Hammonds
Eating well and juicing
by margaret oliver
trouvez un traitement
by Chantal Cote
Les contacts via faceboook avec un groupe privé de personnes atteintes du TOP
by Michelle Lorin Janod
Eating right.
by Sharon Mathews