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How do I know if I have Relapsing Polychondritis?

What signs or symptoms may make you suspect you may have Relapsing Polychondritis. People who have experience in Relapsing Polychondritis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Relapsing Polychondritis?
13 answers
I believe the first symptoms or RP are ear pain, redness & inflammation, sinus problems or stuffy nose & possibly skin conditions. Of course all patients are different.

Posted Aug 14, 2017 by Susan 2000
For me, the red ears was significant. Not many diseases cause your ears to get red, painful, and inflamed. My ear canals will swell shut. But not everyone has the same symptoms. I was lucky to be diagnosed by an Internal Medicine doctor after I moved to Texas. My doctor said that most doctors learn about RP in med school, but they never see a case of it, so they forget about it.

Posted Sep 1, 2017 by Diane 2050
By monitoring symptoms. The obvious signs can be any or all of the following:

Swollen, red, tender ears.
inflamed tender nose
hoarse voice
stridor
dry cough
breathlessness
saddle nose
painful swollen joints
inflammation of cartilage
red, swollen eyes.

Posted Mar 20, 2018 by Lisa Matthews (Lissy) 4800
Tour wars start looking funny and your nose

Posted Jun 12, 2019 by Tmrcarlson 3550
I first experienced an episode of scleritis. It was suspected at that time I may have an autoimmune disease as scleritis is linked to several autoimmune conditions. I then awoke one morning several months later with a swollen, very red nose. I felt like I had been smashed in the face with a baseball bat. The swelling lasted near 2-3 weeks. Prior to this I experienced episodes of ear canal pain without evidence of infection. I also had intermittent facial swelling and ongoing pain in the left eye. From there other joints like ribs, knees, wrists, feet and shoulders began to swell and ache. I developed oesophageal dysmotility, dynamic tracheal collapse and pericardial effusion and thyroid swelling. MRIs showed chondropathy and effusions in joints and oedema. After 2 years and numerous specialists I was diagnosed with severe relapsing polychondritis.

Posted Jun 12, 2019 by Kaz 3000
Visit your gp and get a referral to a rheumatologist. Keep a diary of symptoms and take photos of flares

Posted Dec 30, 2019 by Leanne 2500
Back to symptoms of red, hot, painful swollen ears, nose, joints, fatigue, pain, headaches, swelling, reaching difficulties etc

Posted Dec 30, 2019 by Carrie 3050
Extreme pain and swelling of joints, soft bone tissue, shrinking of cartilage supported physical features, Loss of voice control and the ability to sing [damaged vocal chords] clinical exhaustion, red rashes.

Posted Mar 20, 2022 by shlawver 2500
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In my case, my ears burned

Posted Oct 2, 2017 by Ana Luiza Bottura 2000
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In my case, it began with a cough, the ecsc and despite the fact that take a lot of antibiotics do not the brain the cough, then after that came the swelling in the ears and nose

Posted Oct 2, 2017 by Kevin Ochoa 2000
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In my case the pavilions of the ears always inflamavam. A month was the right ear, and in the following month the left ear. And so it went on for a year, until I started to treat you appropriately.

Posted Oct 2, 2017 by Glaucia 1800
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My case began with a great deal of inflammation of the nose, ears, fatigue, pain in all the joints, ribs, in order to widespread pain

Posted Oct 23, 2017 by Julai 100
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With redness, pain, swelling, and hardening of the ear for more than three weeks. Sensitivity to the sun. I went to the Ent doctor who referred me to the Dermatologist to perform a biopsy of the cartilage confirming the condition. I was sent to Rheumatology for treatment with drugs.

Posted Nov 7, 2017 by Cuquis 100

Do I have Relapsing Polychondritis?

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World map of Relapsing Polychondritis

Find people with Relapsing Polychondritis through the map. Connect with them and share experiences. Join the Relapsing Polychondritis community.

Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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