What signs or symptoms may make you suspect you may have Relapsing Polychondritis. People who have experience in Relapsing Polychondritis offer advice of what things may make you suspicious and which doctor you should go to to receive treatment
I believe the first symptoms or RP are ear pain, redness & inflammation, sinus problems or stuffy nose & possibly skin conditions. Of course all patients are different.
For me, the red ears was significant. Not many diseases cause your ears to get red, painful, and inflamed. My ear canals will swell shut. But not everyone has the same symptoms. I was lucky to be diagnosed by an Internal Medicine doctor after I moved to Texas. My doctor said that most doctors learn about RP in med school, but they never see a case of it, so they forget about it.
I first experienced an episode of scleritis. It was suspected at that time I may have an autoimmune disease as scleritis is linked to several autoimmune conditions. I then awoke one morning several months later with a swollen, very red nose. I felt like I had been smashed in the face with a baseball bat. The swelling lasted near 2-3 weeks. Prior to this I experienced episodes of ear canal pain without evidence of infection. I also had intermittent facial swelling and ongoing pain in the left eye. From there other joints like ribs, knees, wrists, feet and shoulders began to swell and ache. I developed oesophageal dysmotility, dynamic tracheal collapse and pericardial effusion and thyroid swelling. MRIs showed chondropathy and effusions in joints and oedema. After 2 years and numerous specialists I was diagnosed with severe relapsing polychondritis.
Extreme pain and swelling of joints, soft bone tissue, shrinking of cartilage supported physical features, Loss of voice control and the ability to sing [damaged vocal chords] clinical exhaustion, red rashes.
In my case, it began with a cough, the ecsc and despite the fact that take a lot of antibiotics do not the brain the cough, then after that came the swelling in the ears and nose
In my case the pavilions of the ears always inflamavam. A month was the right ear, and in the following month the left ear. And so it went on for a year, until I started to treat you appropriately.
With redness, pain, swelling, and hardening of the ear for more than three weeks. Sensitivity to the sun. I went to the Ent doctor who referred me to the Dermatologist to perform a biopsy of the cartilage confirming the condition. I was sent to Rheumatology for treatment with drugs.
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
i had progressively worsening breathing issues for many years before my diagnosis of rp. I went through many specialists and tests and no one could identify why I was having breathing issues. I had no outward signs of rp until one day my ears swe...
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...