Living with Relapsing Polychondritis. How to live with Relapsing Polychondritis?

Can you be happy living with Relapsing Polychondritis? What do you have to do to be happy with Relapsing Polychondritis? Living with Relapsing Polychondritis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Relapsing Polychondritis

Posted Apr 26, 2017 by Freya 1000

Yes. A positive attitude. Stress can made things worse.

Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800

It is really difficult to remain happy having RP. You need to have goor support from close family but also need to enjoy life as much as possible when in good days.

Posted Apr 27, 2017 by Laoura 2050

Have great support. Great family. Join the Facebook support group. These all help keep you sane.

Posted Aug 9, 2017 by Louise C 1450

I have lived with RP so long that I've learned to not sweat the small stuff. I'm also happier than in the past as I now know my life is not over. I choose to try to offer support to others as well. My glass is 1/2 full, not 1/2 empty.

Posted Aug 14, 2017 by Susan 2000

I try to control the disease and not let it control me. I refuse to give in to it. My positive thinking comes from many scriptures in the Bible. I try to keep this disease in perspective. It's not going to be the center of my life. So during the good days, I make the best of them. I try not to use words like, "I can't".

Posted Sep 1, 2017 by Diane 2050

Try and do what you can and feel up to doing.

Posted Jun 11, 2019 by [email protected] 1000

Pain management methotrexate and TNF work but insurance is hard to approve

Posted Jun 12, 2019 by Tmrcarlson 3550

Living with relapsing polychondritis is tough. If you are like myself with severe relapsing polychondritis and unable to work there are limitations on every day activities such as showering, cleaning, cooking etc. At times it is also depressing being isolated and in pain. I try to do something everyday whether it is colouring in, knit if I can, read, play a game on iPad, get involved in social media groups etc
It’s important to try to find something that makes you happy. If you need to sleep don’t be afraid to do that as you need to get your rest and strength.

Posted Jun 12, 2019 by Kaz 3000

This is very hard, and a very lonely disease, not many doctors know how to help. It's best to join a support group, where you can get support from people who suffer the same condition.

Posted Dec 30, 2019 by Leanne 2500

Get through each day, hour, moment the best way you know how, find a good rheumatologist who understands your condition and record symptoms

Posted Dec 30, 2019 by Carrie 3050

emotionally and mentally develop a strong resistance to pain. Busy activity and distractions. Have a "safety list" of comforting activities during mood swings, depression, and extreme pain.

Posted Mar 20, 2022 by shlawver 2500

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That does not give up to be happy... are the side effects of cortisone, ends up with mood, depression , panic , fatigue, and weight gain.

Posted Oct 2, 2017 by Ana Luiza Bottura 2000

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Have many friends that will support you and be strong

Posted Oct 2, 2017 by Kevin Ochoa 2000

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Happy always!
In my case, the effects of the corticosteroids are very strong and cause depression, weight gain, excessive sweating, tiredness. But we have to fight against this and be the stronger for it.

Posted Oct 2, 2017 by Glaucia 1800

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You have to know your body and when you have outbreaks you can stop your activities, but if you can be happy, accept it and move forward

Posted Oct 2, 2017 by Sandra 950