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Relapsing Polychondritis prognosis

What is the prognosis if you have Relapsing Polychondritis? Quality of life, limitations and expectatios of someone with Relapsing Polychondritis.

Relapsing Polychondritis prognosis
6 answers
RP can be life threatening, debilitating and difficult to diagnose and prognosis is variable, depending on organ involvement and treatment complications. Where the disease is mild or responds quickly to treatment, there is a good prognosis.

Posted Mar 20, 2018 by Lisa Matthews (Lissy) 4800
Death from breaking down of trachea and heart and kidneys

Posted Jun 12, 2019 by Tmrcarlson 3550
The long-term outlook (prognosis) for people with relapsing polychondritis (RP) varies from person to person. In general, RP is a chronic and progressive (worsening overtime) condition. Some form of disability is common in the later stages of RP; these may include visual impairment, hearing loss, vestibular dysfunction, and/or cardiopulmonary (heart and lung) disease.
Severe cases of RP can be life-threatening. Respiratory complications (windpipe collapse and infections) are the most common cause of death followed by cardiovascular (heart and blood vessel) involvement.

Posted Jun 13, 2019 by Kaz 3000
Nobody can tell you how it will affect you. I have had it for 35 years. It will come and go, and it can get better if treatment focuses on stopping the flares

Posted Dec 30, 2019 by Leanne 2500
The outcomes for people with polychondritis vary a lot. People whose lungs are affected may have a shorter life span. However, disease which is more mild or responds quickly to treatment can have an excellent prognosis.

Despite the fact that many patients have some problems with hearing, eyesight or breathing, RP is often chronic but tolerable.

Posted Dec 30, 2019 by Carrie 3050
Death can be prolonged with medication.

Posted Mar 20, 2022 by shlawver 2500

Relapsing Polychondritis prognosis

Relapsing Polychondritis life expectancy

What is the life expectancy of someone with Relapsing Polychondritis?

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Celebrities with Relapsing Polychondritis

Celebrities with Relapsing Polychondritis

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Is Relapsing Polychondritis hereditary?

Is Relapsing Polychondritis hereditary?

15 answers
Is Relapsing Polychondritis contagious?

Is Relapsing Polychondritis contagious?

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Natural treatment of Relapsing Polychondritis

Is there any natural treatment for Relapsing Polychondritis?

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ICD9 and ICD10 codes of Relapsing Polychondritis

ICD10 code of Relapsing Polychondritis and ICD9 code

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Living with Relapsing Polychondritis

Living with Relapsing Polychondritis. How to live with Relapsing Polychondr...

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Relapsing Polychondritis diet

Relapsing Polychondritis diet. Is there a diet which improves the quality o...

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World map of Relapsing Polychondritis

Find people with Relapsing Polychondritis through the map. Connect with them and share experiences. Join the Relapsing Polychondritis community.

Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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