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Can people with Relapsing Polychondritis work? What kind of work can they perform?

See how people with experience in Relapsing Polychondritis give their opinion about whether people with Relapsing Polychondritis can work and what kind of jobs are more appropriated for people with Relapsing Polychondritis

Relapsing Polychondritis jobs
18 answers
It depends on the severity of the disease. Some are very debilitated and others my not be as progressed in there disease at the time.

Posted Apr 26, 2017 by Freya 1000
Every person is different and rp affects us in very different ways to varying degrees. Many work still in their normal cateers but many also are on disability benefits.

Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800
People can work but need to have a work with no stress and adjustable to their condition according to the stage of the condition of each person.

Posted Apr 27, 2017 by Laoura 2050
I think it depends on how severely affected you are and how well your disease is controlled. I am unable to work. My health is not stable enough. I would be very unreliable.

Posted Aug 9, 2017 by Louise C 1450
I think depending on the severity of RP determines if a patient can work or not. For me I had very complex problems & heart surgery so I could not.

Posted Aug 14, 2017 by Susan 2000
No....I don't think we can. The only type of work I think I could do would be something on the computer from home. I try to stay away from crowds of people due to my immune system. However, there are days that I would not be able to type for hours at a time.

I think there are a very small percentage of people with RP who are able to work full time.

Posted Sep 1, 2017 by Diane 2050
I'm still working 3 days a week but it's taking a toll. Im fatigued and the medicine side effects cause me to sweat a lot ( very attractive!) and my electrolytes are all over the place. Its very hard to be taken seriously when you are so unreliable. Brain fog also doesn't help.

Posted Feb 3, 2018 by Barbara 100
Yes they can defiantly work. Doesn’t effect everyone the same.

Posted Jun 11, 2019 by [email protected] 1000
Yes but sitting work and not for long periods

Posted Jun 12, 2019 by Tmrcarlson 3550
For those who have mild or controlled relapsing polychondritis they can usually remain productive in the workplace. However those with severe or uncontrollable relapsing polychondritis find it hard to perform daily tasks and usually cease working. It all depends on the status of the disease and whether other autoimmune conditions are involved. Fatigue is a major part of relapsing polychondritis.

Posted Jun 12, 2019 by Kaz 3000
Yes, they can work as much as their condition allows

Posted Dec 30, 2019 by Leanne 2500
It varies between sufferers and how they are affected by their disease, how effectively their disease responds to treatment and many other factors.

Posted Dec 30, 2019 by Carrie 3050
I taught school for 30 years while suffering relapses. The disease did not affect my cognitive abilities.

Posted Mar 20, 2022 by shlawver 2500
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Depends on how much the disease has affected you.

Posted Oct 1, 2017 by Ana Luiza Bottura 2000
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If you can work in any position. With the exception of jobs that expose you to prolonged time in the sun

Posted Oct 2, 2017 by Kevin Ochoa 2000
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Yes, but only in moments outside of the buds, and probably with a reduced day.

Posted Oct 2, 2017 by cmomo 600
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Depends on what each one can.
In my case working in the kitchen of a restaurant and is a heavy work. For now I am giving an account, even if that sometimes costs me...but I insist not to betray me.

Posted Oct 2, 2017 by Glaucia 1800
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In my case I can't work on anything, I have a lot of pain and tiredness

Posted Oct 2, 2017 by Sandra 950

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Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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