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Can people with Relapsing Polychondritis work? What kind of work can they perform?

See how people with experience in Relapsing Polychondritis give their opinion about whether people with Relapsing Polychondritis can work and what kind of jobs are more appropriated for people with Relapsing Polychondritis

Relapsing Polychondritis jobs

Can people with Relapsing Polychondritis work? What kind of work can they perform?


Relapsing Polychondritis (RP) is a rare autoimmune disease that primarily affects the cartilage in the body. It causes inflammation and destruction of cartilage in various areas, including the ears, nose, joints, and respiratory system. The symptoms of RP can vary widely from person to person, and the severity of the disease can also fluctuate over time.


Given the unpredictable nature of RP, it can be challenging for individuals with this condition to maintain regular employment. The symptoms of RP, such as pain, swelling, and fatigue, can significantly impact a person's ability to perform certain tasks or maintain a consistent work schedule. However, it is important to note that the impact of RP on an individual's ability to work can vary depending on the severity of their symptoms and the specific job requirements.


For individuals with mild to moderate RP symptoms, it may be possible to continue working in a suitable job with certain accommodations. This could involve adjustments to the work environment, such as ergonomic modifications or flexible scheduling, to help manage symptoms and reduce the risk of flare-ups. It is crucial for individuals with RP to communicate openly with their employers about their condition and work together to find reasonable accommodations.


However, for individuals with more severe RP symptoms or frequent flare-ups, it may be necessary to explore alternative work options. In such cases, individuals may need to consider part-time work, remote work, or even a career change to a less physically demanding or more flexible job. This can help accommodate the unpredictable nature of RP and provide individuals with the necessary flexibility to manage their symptoms effectively.


It is important for individuals with RP to prioritize their health and well-being when considering their work options. Seeking support from healthcare professionals, such as rheumatologists or occupational therapists, can be beneficial in determining the most suitable work arrangements and accommodations.


Ultimately, the ability to work with RP depends on the individual's specific symptoms, the severity of the disease, and the nature of their job. While some individuals with RP may be able to continue working with appropriate accommodations, others may need to explore alternative work options that better align with their health needs. It is crucial for individuals with RP to advocate for themselves, communicate their needs, and seek support to ensure they can maintain a fulfilling and manageable work-life balance.


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19 answers
It depends on the severity of the disease. Some are very debilitated and others my not be as progressed in there disease at the time.

Posted Apr 26, 2017 by Freya 1000
Every person is different and rp affects us in very different ways to varying degrees. Many work still in their normal cateers but many also are on disability benefits.

Posted Apr 27, 2017 by Lisa Matthews (Lissy) 4800
People can work but need to have a work with no stress and adjustable to their condition according to the stage of the condition of each person.

Posted Apr 27, 2017 by Laoura 2050
I think it depends on how severely affected you are and how well your disease is controlled. I am unable to work. My health is not stable enough. I would be very unreliable.

Posted Aug 9, 2017 by Louise C 1450
I think depending on the severity of RP determines if a patient can work or not. For me I had very complex problems & heart surgery so I could not.

Posted Aug 14, 2017 by Susan 2000
No....I don't think we can. The only type of work I think I could do would be something on the computer from home. I try to stay away from crowds of people due to my immune system. However, there are days that I would not be able to type for hours at a time.

I think there are a very small percentage of people with RP who are able to work full time.

Posted Sep 1, 2017 by Diane 2050
I'm still working 3 days a week but it's taking a toll. Im fatigued and the medicine side effects cause me to sweat a lot ( very attractive!) and my electrolytes are all over the place. Its very hard to be taken seriously when you are so unreliable. Brain fog also doesn't help.

Posted Feb 3, 2018 by Barbara 100
Yes they can defiantly work. Doesn’t effect everyone the same.

Posted Jun 11, 2019 by [email protected] 1000
Yes but sitting work and not for long periods

Posted Jun 12, 2019 by Tmrcarlson 3550
For those who have mild or controlled relapsing polychondritis they can usually remain productive in the workplace. However those with severe or uncontrollable relapsing polychondritis find it hard to perform daily tasks and usually cease working. It all depends on the status of the disease and whether other autoimmune conditions are involved. Fatigue is a major part of relapsing polychondritis.

Posted Jun 12, 2019 by Kaz 3000
Yes, they can work as much as their condition allows

Posted Dec 30, 2019 by Leanne 2500
It varies between sufferers and how they are affected by their disease, how effectively their disease responds to treatment and many other factors.

Posted Dec 30, 2019 by Carrie 3050
I taught school for 30 years while suffering relapses. The disease did not affect my cognitive abilities.

Posted Mar 20, 2022 by shlawver 2500
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Depends on how much the disease has affected you.

Posted Oct 1, 2017 by Ana Luiza Bottura 2000
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If you can work in any position. With the exception of jobs that expose you to prolonged time in the sun

Posted Oct 2, 2017 by Kevin Ochoa 2000
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Yes, but only in moments outside of the buds, and probably with a reduced day.

Posted Oct 2, 2017 by cmomo 600
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Depends on what each one can.
In my case working in the kitchen of a restaurant and is a heavy work. For now I am giving an account, even if that sometimes costs me...but I insist not to betray me.

Posted Oct 2, 2017 by Glaucia 1800
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In my case I can't work on anything, I have a lot of pain and tiredness

Posted Oct 2, 2017 by Sandra 950

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Stories of Relapsing Polychondritis

RELAPSING POLYCHONDRITIS STORIES
Relapsing Polychondritis stories
The first time I noticed symptoms, I thought I was having an allergic reaction to something at work. My ears became so red and inflamed and hurt so bad. I let it go on for almost 3 days before finally going to a hospital where I was diagnosed with re...
Relapsing Polychondritis stories
It began with dry nose, nose bleeding and what my GP thought was a sinus infection. Antibiotics and prednisone perscribed, helped for a while, then reoccurred. Ear then swelled over twice the size - red, shiny and moist, GP again said outer ear infec...
Relapsing Polychondritis stories
i had progressively worsening breathing issues for many years before my diagnosis of rp.  I went through many specialists and tests and no one could identify why I was having breathing issues.  I had no outward signs of rp until one day my ears swe...
Relapsing Polychondritis stories
I have had strange symptoms before this came to light, but during my last trimester of my pregnancy with my youngest son, I had a severe respiratory infection that never seemed to get better. I have had exercise induced asthma since I was young and t...
Relapsing Polychondritis stories
I was officially diagnosed with RP 2 yrs ago. No one else in my family has it. It started approximately 5 years ago with ear flares, jumping from one to the other. My PCP happened to go to a conference where RP was discussed, and soon contacted me to...

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Relapsing Polychondritis forum

RELAPSING POLYCHONDRITIS FORUM
Relapsing Polychondritis forum
I don't think RP is as rare as we are led to believe. It seems many symptoms are unrelated. You go to an ortho doc for knee/joint pain. You go to an ENT for ears and throat. You go to an ophthalmologist for eyes. You go to a dermatologist for skin. T...

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