I have RP and have for 34 years. I have not let it slow me down until recently. Since my RP does not have pigmented spicules, I went undiagnosed til age 25 when it was determined that I had 5 degrees of field remaining.. Since I have no pigment in my retinas, and am losing it in my skin, plus several autoimmune complications, I think I have an as yet unidentified syndrome.