- Russell Silver Syndrome
- Interviews
Sassy kitten 93's interview
How did all start?
During gestation I guess
Do you already have a diagnosis? How long did it take you to get it?
Seattle children's hosp
For what medical specialties have you been treated? What has been the most useful specialty for your?
Othopidic for my hips and shoulders
What has been the most useful thing for you so far?
A positive out look on my size and life
What have been your biggest difficulties?
Not knowing about RSS
How has your social and family environment reacted? Have your social or family relationships changed?
My family does not understand me at all I have had alot of behavior difficulties
What things have you stopped doing?
Walking running sitting up WORK being social with friends and family
What do you think about the future?
Uncertain about my future
So far, which years have been the best years in your life? What have you done during them?
Mid teens I was still very very active
What would you like to do if you didn’t have your condition?
Not sure never thought about it I have had so many limitations on my life I wouldn't know how to live any other way
If you had to describe your life in a sentence, what would it be?
Frustrating and complicated but fulfilling and rewarding in some ways
Finally, what advice would you give to a person in a similar situation?
Always be positive about your life there is some one out their that is worse off than you or me find a way to be happy with your size because it is part of you and there's nothing that can change who you truly are and be true to yourself