A Russell Silver Syndrome interview , Fibromyalgia.

Sassy kitten 93's interview


How did all start?

During gestation I guess

Do you already have a diagnosis? How long did it take you to get it?

Seattle children's hosp

For what medical specialties have you been treated? What has been the most useful specialty for your?

Othopidic for my hips and shoulders

What has been the most useful thing for you so far?

A positive out look on my size and life

What have been your biggest difficulties?

Not knowing about RSS

How has your social and family environment reacted? Have your social or family relationships changed?

My family does not understand me at all I have had alot of behavior difficulties

What things have you stopped doing?

Walking running sitting up WORK being social with friends and family

What do you think about the future?

Uncertain about my future

So far, which years have been the best years in your life? What have you done during them?

Mid teens I was still very very active

What would you like to do if you didn’t have your condition?

Not sure never thought about it I have had so many limitations on my life I wouldn't know how to live any other way

If you had to describe your life in a sentence, what would it be?

Frustrating and complicated but fulfilling and rewarding in some ways

Finally, what advice would you give to a person in a similar situation?

Always be positive about your life there is some one out their that is worse off than you or me find a way to be happy with your size because it is part of you and there's nothing that can change who you truly are and be true to yourself

Interview Russell Silver Syndrome

Sep 16, 2017

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