Chronic flare-ups since 2003 to present

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IN 2003 I WAS FIRST DIAGNOSED WITH PULMONARY SARCOIDOSIS. ONCE AGAIN IN 2005 EXPERIENCE A FLARE UP WHICH INVOLVE MY LIVER AND MY SPLEEN. AGAIN 2007 THEY CANNOT FIND WHAT ORGANS ARE INVOLVED BUT MY ACE LEVELS WERE THE HIGHEST THE DOCTORS EVER SEEN IN HIS CAREER. EVERY COUPLE YEARS IT SEEMS I SUFFER FLARE UP AND PRESENTLY IS KICKING MY ASS. MY JOINTS FEEL LIKE THEY'RE BEING PUSHED APART AND FILLED IN WITH CEMENT IT SUCKS I REFUSE PREDNISONE FOR TREATMENT BECAUSE I NOW WEIGH 270 POUNDS WHEREAS WHEN I FIRST WAS DIAGNOSED IN 2003 I WEIGH 180 POUNDS. MY DIAGNOSIS IN 2003 WAS WHILE I WAS ON ACTIVE DUTY IN THE UNITED STATES NAVY I GAINED ABOUT 20 POUNDS WITH THAT PREDNISONE TREATMENT AND DUE TO OTHER PHYSICAL AILMENTS AND DISABILITIES I WASN'T ABLE TO GET THE 20 POUNDS OFF. AND EACH TIME I GET A FLARE-UP I GO TO THE DOCTORS AT THE VA THEY PUT ME ON PREDNISONE I GAINED WEIGHT AND THEN THEY BITCH AT ME BECAUSE I CAN'T LOSE THE WEIGHT BECAUSE I'M 100% DISABLED AND I'M PHYSICALLY NOT ABLE TO DO THE EXERCISES THAT I NEED TO DO. THIS IS WHY REFUSE PREDNISONE. THEY WANT TO GIVE ME DRUGS THAT ARE GOING TO MAKE ME GAIN A LOT OF WEIGHT AND THEN THEY WON'T DO ANYTHING TO HELP ME LOSE THAT WEIGHT EXCEPT FOR BITCH AT ME AND TELL ME I'M TOO BIG ALREADY KNOW THAT. I DON'T KNOW IF MY STORY WILL HELP ANYONE OR NOT BUT WHAT I DID FIND THAT AIDED WITH MY TREATMENT WAS MEDICINAL MARIJUANA I GREW IT LEGALLY IN THE STATE OF OKLAHOMA I GOT CAUGHT I'VE PAID MY PENALTIES. THE VA HAD ME TAKING 48 PILLS A DAY AT THE TIME THAT WASN'T EVEN INCLUDING THE PREDNISONE WHEN I FIRST DECIDED HOW TO GROW MY OWN MEDICINE I WAS ABLE TO DROP DOWN TO 8 PILLS A DAY AND HAD A QUALITY OF LIFE THAT WAS BEYOND BELIEF THEN I GOT ARRESTED IN2010 AND NOW I'M BACK TO BEING POISONED BY ALL THESED MEDICATIONS. I WAS BORN AND RAISED RIGHT HERE IN OKLAHOMA SPENT MOST OF MY LIFE ON LAND THAT I LIVE ON EXCEPT FOR MY 10 YEARS THAT I PROUDLY SERVED THIS COUNTRY. I WISH I COULD GO TO A STATE WHERE WAS LEGAL BUT I'M TIED TO OKLAHOMA I OWN PROPERTY I HAVE FAMILY HERE I HAVE AN ELDERLY MOTHER THAT I TAKE CARE OF WHEN SHE IS NOT TAKING CARE OF ME LIKE NOW. I JUST WANT TO REACH OUT TO PEOPLE THAT HAVE THE SAME PROBLEM THAT I DO AND CAN UNDERSTAND A LITTLE BIT BECAUSE NONE OF MY FRIENDS NONE OF MY FAMILY CAN UNDERSTAND. WE HAVE FAMILY HISTORY OF PARKINSONS, LUPUS, CANCER, AND HEART DISEASE. ..NOW WE HAVE SARCOIDOSIS IN THE FAMILY. THESE CONDITIONS HAVE A LOT OF SIMILAR SYMPTOMS, BUT IT IS NOT THE SAME. ANYONE CAN FEEL FREE TO CONTACT ME IF THEY WISH I DON'T MIND. ITS A HARD LIFE TO DEAL WITH SOMETHING THAT'S SO CHRONIC I WOULD SELL MY SOUL JUST TO HAVE THE ACUTE ONE-TIME FLARE UP. UNFORTUNATELY PRESENTLY I AM FIGHTING A FLARE UP AND I'M TRYING TO STAY AWAY FROM THE VA AND I HAVE A FEELING IT'S NOT GOING TO WORK FOR VERY MUCH LONGER I SUFFER WITH A LOT OF JOINT PAIN RIGHT NOW THAT IS BEYOND ANYTHING I HAVE DEALT WITH. THIS IS PROBABLY THE WORST FLARE-UP I'VE EVER HAD I'M NOT I'M REALLY NOT DOING GOOD. ANYBODY HAVE ANY OTHER TREATMENT OPTIONS IF THEY TRIED BUT DOESN'T CAUSE THE WONDERFUL WEIGHT GAIN THAT'S ASSOCIATED WITH PREDNISONE I WOULD APPRECIATE IN THE INPUT. BUT THE THING ABOUT IT WE ALL KNOW OUR BODIES WE HAVE SUFFERED WITH A LOT OF STUFF AND WE HAVE DEALT WITH MANY THINGS SUCH AS A SARCOID FOR SO MANY YEARS AND WE TELL THE DOCTORS WHAT WORKS WHAT DOESN'T WORK AND THEY DON'T GIVE A DAMN BECAUSE WE DON'T HAVE THEIR DEGREES THEIR SCHOOLING. BUT YET WE'VE EXPERIENCED THAT WE'VE DEALT WITH IT WE'VE TRIED ALL THE STUFF THAT THEY'RE TRYING AND WANT TO TRY IT AS EITHER WORKED OR NOT WORKED I'VE BEEN DEALING WITH PHYSICAL PAIN I'VE BEEN BASICALLY 100% DISABLED SINCE 1998 IT TOOK THE NAVY UNTIL 2004 TO FINALLY DISCHARGED ME. I REALLY ENJOY LIFE I JUST WANT A QUALITY OF LIFE AGAIN THANK YOU FOR LISTENING.

CHRIS