Stories of Scoliosis

Scoliosis stories
I wish that more MDs thought more carefully about CVID, PANS/PANDAS and EDS/MCAS.  If I had been diagnosed and treated earlier in life with Igs (instead of being called a hypochondriac and shuffled off to conventional psychiatry), I may not have...
Scoliosis stories
I'm 20 and am currently diagnosed with  Neurofibromatosis.{Severe case of type 1, multiple sets of plexiform neurofibromas inside body intruding on organs and surrounding the aorta artery.}  Gastroparesis. Kyphoscoliosis. {From NF} Scol...
Scoliosis stories
I was diagnosed with scoliosis at the age of fourteen during a routine check up at the doctors.  I went in to the surgery with a cough that I couldn’t shift and left with an appointment to see a specialist spinal surgeon.  That one es...
Scoliosis stories
I shall briefly cover relevant things.... I suffered from physical and mental abuse throughout my childhood. My mum drank while pregnant with me and my brothers and I believe we have all suffered due to it. My childhood was riddled with physical pa...
Scoliosis stories
My son was born in 1998. He has CHARGE - diagnosed within 24 hours and a whole list of additional issues they initially thought was Chromozone 6 Ring Syndrome.. After almost 100 surgical interventions - including 2 HEART, 2 eye, etc.. He is living in...

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Statistics of Scoliosis

92 people with Scoliosis have taken the SF36 survey. Mean of Scoliosis is 1308 points (36 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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