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What are the best treatments for Small Fiber Neuropathy?
See the best treatments for Small Fiber Neuropathy here
Discalmer - I hold a diagnoss, not a medical degree.
It comes down to treating the underlying cause - if found. That is the number one treatment that is key to your success. Once an underlying diagnosis is found to be the root of all evil within, a new course of treatments from IVIG to daily vitamins can become a well worth it treatment.
Idiopathic - AKA - Dr. can't figure it out due to the lack of research into SFN - the current boat I'm in - It's not a dead end, nor a welp there's nothing we can do for you moment. From Gabapentin, opioids (Oh no! that dirty word! Yep I said it) SSRI's, lidocaine patches/creams/gels and a few others are all somewhere to start. Some testing into IVIG is being done on those with idiopathic SFN and from what I've read it seems to have some good results and looks like if that's the case it may be autoimmune related (again, this is something that needs more research).
It comes down to treating the underlying cause - if found. That is the number one treatment that is key to your success. Once an underlying diagnosis is found to be the root of all evil within, a new course of treatments from IVIG to daily vitamins can become a well worth it treatment.
Idiopathic - AKA - Dr. can't figure it out due to the lack of research into SFN - the current boat I'm in - It's not a dead end, nor a welp there's nothing we can do for you moment. From Gabapentin, opioids (Oh no! that dirty word! Yep I said it) SSRI's, lidocaine patches/creams/gels and a few others are all somewhere to start. Some testing into IVIG is being done on those with idiopathic SFN and from what I've read it seems to have some good results and looks like if that's the case it may be autoimmune related (again, this is something that needs more research).
Posted Sep 29, 2018 by Brian 1350
Since small fiber neuropathy is a symptom rather than a disease, it is important to treat the cause. In the 30% of cases where the cause is unknown, various medications are available, but continuing to find the cause will help direct treatment.
Posted Jul 12, 2021 by Jo 3150
IF you have "Idiopathic" genetic progressive Small Fibre Polyneuropathy, there are no treatments. The University Neurologists tell you have an incurable disease and "have a nice life".
There are thousands of treatments for the sub-illnesses that you can try with trial and error IF you have an open minded and caring Dermatologist, GI, Allergist-ENT...
You can't stop your body as of 2022 from using your white blood cells to kill off healthy nerves all over your body. You can only manage SOME of the symptoms and plan to live in such a way that you can afford to and be comfortable in, relatively speaking. It is Hell on Earth if you are poor, trust me, I know.
The sooner you or a loved one knows they have this illness, the sooner you can make correct decisions such as where to live, improving your diet (which helps some issues but nerves will be killed off that you need to use the nutrients).
There is an experimental treatment that was counter-productive for me but Neurologists claim work for some people, though not many. It involves an IV for a week of health plasma. In my case it made all my overheating and less concerning sleeping of hands/feet and reflux issues and anxiety disorders worse, not better. I wouldn't say do not try it, but don't keep doing it if you are can see you are getting worse. My Neurologist was pissed I didn't do a 2nd week and that was bad advice and not worth considering. With all medications, SOME people will have the reverse effect of that which is desired. DOCUMENT these reactions and stop the Rx that do this to you. It's rare but less rare than SFPN and happens to me often. I would argue that nerve loss is a contributing factor.
This is called "The PARADOXICAL EFFECT" and again, it is more common by a longshot than SFPN or ALS etc. Watch for it and stop any Rx that is giving you the opposite effect the MD gave it to you, hoping for a good reaction.
IT CAN HAPPEN with the IV blood plasma treatment because it happened to me. I would guess because of a preservative in the plasma but m Neurologist was not opening to discussing the matter, though I thought it was of scientific value. What percentage of people will have the Paradoxical Effect who have SFPN with any other Rx trials (there are a few for Nerve Pain, for example) should be studied. It is not.
Many more people have luck with the Nerve Pain Rx. There are around 4 since some are the same class and overlap. None helped me. Those will help some people. They seem to be more about Fibromyalgia which is a very common component of SFPN though few people with Fibromyalgia have SFPN.
If you are a marijuana person ( I find it vile and I also have the Paradoxical Effect with it, even tea and chocolate) you will surely find a healthier alternative to pain though this is NOT one of my personal concerns since I can handle the pain better than roasting like a chicken in a microwave...
There are thousands of treatments for the sub-illnesses that you can try with trial and error IF you have an open minded and caring Dermatologist, GI, Allergist-ENT...
You can't stop your body as of 2022 from using your white blood cells to kill off healthy nerves all over your body. You can only manage SOME of the symptoms and plan to live in such a way that you can afford to and be comfortable in, relatively speaking. It is Hell on Earth if you are poor, trust me, I know.
The sooner you or a loved one knows they have this illness, the sooner you can make correct decisions such as where to live, improving your diet (which helps some issues but nerves will be killed off that you need to use the nutrients).
There is an experimental treatment that was counter-productive for me but Neurologists claim work for some people, though not many. It involves an IV for a week of health plasma. In my case it made all my overheating and less concerning sleeping of hands/feet and reflux issues and anxiety disorders worse, not better. I wouldn't say do not try it, but don't keep doing it if you are can see you are getting worse. My Neurologist was pissed I didn't do a 2nd week and that was bad advice and not worth considering. With all medications, SOME people will have the reverse effect of that which is desired. DOCUMENT these reactions and stop the Rx that do this to you. It's rare but less rare than SFPN and happens to me often. I would argue that nerve loss is a contributing factor.
This is called "The PARADOXICAL EFFECT" and again, it is more common by a longshot than SFPN or ALS etc. Watch for it and stop any Rx that is giving you the opposite effect the MD gave it to you, hoping for a good reaction.
IT CAN HAPPEN with the IV blood plasma treatment because it happened to me. I would guess because of a preservative in the plasma but m Neurologist was not opening to discussing the matter, though I thought it was of scientific value. What percentage of people will have the Paradoxical Effect who have SFPN with any other Rx trials (there are a few for Nerve Pain, for example) should be studied. It is not.
Many more people have luck with the Nerve Pain Rx. There are around 4 since some are the same class and overlap. None helped me. Those will help some people. They seem to be more about Fibromyalgia which is a very common component of SFPN though few people with Fibromyalgia have SFPN.
If you are a marijuana person ( I find it vile and I also have the Paradoxical Effect with it, even tea and chocolate) you will surely find a healthier alternative to pain though this is NOT one of my personal concerns since I can handle the pain better than roasting like a chicken in a microwave...
Posted Feb 3, 2022 by Mark 2000
