Stories of Spina bifida

Spina bifida stories
Spina bifida is an abnormality of the nervous system that occurs in a baby's development during the first month pregnancy. Most textbooks define spina bifida as a neural tube defect or a gap in the fusing of the neural tube that encloses the spinal c...
Spina bifida stories
At 12 weeks pregnant I politely declined to take part in any antenatal screening, confident in my belief that even if something was not quite right that I would continue with the pregnancy anyway (Down Syndrome being top of mind considering that I wa...
Spina bifida stories
We found out at our 20 week anomaly scan that amelia-hope has spina bifida hydrocephalus and talipes. It was a very scary time. Amelia was born 20th august 2013 she had he back closure at 3 days old and she had her vp shunt fitted at 10 days old. Tou...
Spina bifida stories

Tell your story and help others

Tell my story

View more

Spina bifida forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Spina bifida

15 people with Spina bifida have taken the SF36 survey. Mean of Spina bifida is 1208 points (34 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Spina bifida

Join the map