What is the life expectancy of someone with Stevens Johnson Syndrome?

I don't know but I believe with the right treatment someone with sjs can live a full normal life

It simply depends on the case. Some are much more severe than others & still live a long life; some progress quickly, some slowly, some take a quick turn. I personally was in an induced come & my family called in to say their goodbyes as it was thought I wouldn't survive the night. Here I am, 6 years later. Many SJS/TEN patients come out of the event rather unscathed & there are many others who end up dealing with other significant issues. SJS itself is an autoimmune disease, not simply an allergy in itself. As such, AI's often beget more AI's. A big issue with this in SJS-land is that the patients associate their later symptoms with their SJS incident. Although SJS may have triggered more disease(s) into action, it is not specifically the cause of those symptoms. Patients often get turned away by their SJS doctors because these new symptoms don't fit the profile --when they should be referred to other specialists, such as a rheumatologist for bone & joint pain, for example.

I had severe SJS in 1966 as an 11 year old child. Little was known about it at the time and I the doctors treated me with the new drug cortiszone. I spent 5 weeks in hospital in isolation. It was a slow journey to total recovery, but here I am 54 years later, having lead a full and normal life with two wonderful daughters and 3 amazing grandchildren - proof that life expectancy is good