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Is it advisable to do exercise when affected by Stiff Person Syndrome? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Stiff Person Syndrome to practice sports and which ones are the most recommended if you have Stiff Person Syndrome

Stiff Person Syndrome sports
6 answers
Lifting low weight weights to keep as much strength and flexabilty in muscles as possible.

Posted Feb 28, 2017 by Loretta 1000
It varies. However, rest and exercise are crucial, exercise can be as simple as a walk around the house, using aids if needed. For those able enough, taking the dog for a walk, preferably accompanied for 'just in case'.

Posted Mar 1, 2017 by Liz 1000
I believe it is always best to keep moving. If all you can do is wiggle your toes then wiggle your toes and try to bend your foot.
Exercise will depend on the individual. Short walks daily if possible. Even if wheel chair or bed bound it is important to try to move and stretch all parts of your body (slowly and gently) to prevent some stiffness. Being honest I think that exercise is most beneficial to those with low mobility. With the help of a gentle physical therapist who understands SPS brought me from bed bound to walking through my house without assistance.

Posted Mar 2, 2017 by Michelle 1500
Someone with SPS can do exercise but in moderation and should know their limits otherwise painful spasms, muscle weakness and such.

Posted Mar 4, 2017 by Jasmine Nardone-Franco 1430
Passive stretching as directed by a physical therapist is very helpful. Swimming in warm water is most helpful. Myofascial massage has been a life saver in my case.

Posted Dec 24, 2021 by Pathdoc 2500
Translated from spanish Improve translation
The sport varies according to the evolution. In general, avoid risky sports and running. Swimming is well tolerated, but there is what to be near the places where they do foot, because of the possibility that they trigger spasms.

Posted Sep 18, 2017 by Fernando Vela Vallejo 3250

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