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Which are the symptoms of Stiff Person Syndrome?

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Stiff Person Syndrome symptoms
7 answers
Inability to freely ambulate.
Inability to bend and flex body.

Posted Feb 28, 2017 by Loretta 1000
I would get rid of the constant stiffness and rigidity. I would love to be able to walk again and getting rid of those two symptoms would make that possible. I also hope it would get rid of some of the constant pain and discomfort.

Posted Mar 1, 2017 by Michelle 1500
Anxiety, rigidity, spasms and the uncertainty of what may happen next.

I would get rid of anxiety as that often causes symptoms to become worse.

Posted Mar 1, 2017 by Liz 1000
Stiff Person Syndrome is a neurological syndrome which makes one not have enough or any gaba in their brain which makes their body and muscle tone weak, have body spasms which vary from muscle to muscle and in some people causes full body spasms that makes ones body contort in ways it should not. It also makes indents in people's limbs after so many spasms. It's a very frustrating syndrome, very painful and alters ones life in ways never imagined.

Posted Mar 4, 2017 by Jasmine Nardone-Franco 1430
Though the symptoms have been many over the course of my disease, the first ones I'd rid myself of would be those that limit my abilities to breath and see, starting with the spasms and rigidity of my diaphragm, heart, lungs, rib cage and now my eyes. The rest can be/are, at times, extremely debilitating but those listed above are the ones that threaten my life, although the eyes could be survivable. One day I imagine living and sleeping in a specialized electric wheelchair won't be enough to hold the rest at bay as it's a progressive disease but at least that area is sustainable for now and there's a sliver of hope that something will be discovered to slow the progression to a crawl or maybe stop it altogether. One can hope.

Posted Sep 17, 2021 by hope7dre 300
Stiffness of chest muscles resulting in decreased oxygen saturation.

Posted Dec 24, 2021 by Pathdoc 2500
Translated from spanish Improve translation
Muscle stiffness, spasms to emotional stimuli,acoustic,tactile, sudden changes of temperstura to the cold, etc, Rupture of the abdominal wall due to the spasms. Falls frequent. In the beginning launched with hyperextension abdominal.

Posted Sep 18, 2017 by Fernando Vela Vallejo 3250

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World map of Stiff Person Syndrome

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Stories of Stiff Person Syndrome

STIFF PERSON SYNDROME STORIES
Stiff Person Syndrome stories
I am a 68 year old male, born in Scotland but live in Sydney Australia who has lived with back problems since 1973, mid 1986 while holidaying in Oregon I went white water rafting on the Rogue River on an inner tube, unfortunately I was thrown off and...
Stiff Person Syndrome stories
I was misdiagnosed with Lupus in 2009 and finally got the correct diagnosis through GAD testing in Oct 2015. My neurologist, who specializes in SPS, Dr. Machado in Conn is the reason I am alive today along with my children and my husband and family. ...
Stiff Person Syndrome stories
Symptoms started very gradually during/after first and only pregnancy in 2004. Full blown symptoms, including stiffness, drooping eyelids and soft palette, vertigo, dizziness, and altered gait by 2008. Diagnosed first with Myasthenia Gravis, and then...
Stiff Person Syndrome stories
2009- infectious mononucleosis 2010 - diffuse toxic goiter 2011- endocrine ophthalmopathy 2013 - diabetes type 1 2013 - thyroidectomy 2014 - c-section 2015 - SPS
Stiff Person Syndrome stories
> My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. ...

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