Story about CRPS Complex Regional Pain Syndrome , Ehlers Danlos, Deaf People, Bipolar Disorder, Lyme Disease, Anorexia, Lupus.

Always been sick, always been overcoming

Nov 29, 2015


Life is full of choices. You can use your broken down car that barely putses along drive home. Or you can get out and try walking. Or you can try a bike. Well you can't do that with your body. So you drive or you don't. 

But ultimately we have to CHOOSE what we are going to do. And I choose to drive my broken body anyway.

I lost my ability to hear at age 6. I was already dealing with with joint swelling and pain that the doctors chalked up to "juvenile arthritus." I was sick on a regular basis. I don't think I went a single year without missing at least 5 days of school. Some years I missed up to 20 a semester. 

I should have never graduated college because if you miss more than two weeks of classes teacher can fail you. TRUST ME. I have been so sick for so many years, Lupus/Lyme's disease, something auto immune. What the monster is we don't know. Is it CRPS? We don't know. But what we do know is I've been sick.

Now with the CRPS the game has changed. It's not a balancing act trying to get rid of the infection from my body. My health needed constant supervision. NOW my body requires more than supervision. It became time to act. To fight to keep some semblance of a life. Some chance to be even remotely healthy. A constant battle.

I do muscle exercises daily, I do a little extra just to maintain basic function. I get annual flu shots. I make sure my vaccines are up to date. I make sure nothing is laxing.

 

I WILL FIGHT THIS MONSTER, I WILL NOT LOSE. BECAUSE I WILL FIND A WAY TO STILL BE ME.

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