My perspective is a little different - I suffer from chronic neurological pain not from syringomyelia, I broke my neck in 1995. Now my 41 year old son has had to accept a diagnosis of syringomyelia. He has been searching for cures/treatments/coping skills for 5 years now before he finally accepted he has syringomyelia. On the pain scale he lives with constant full right side body pain at 6 on good day... 10 on bad days. He is a very private person and I am his only confidant in the discussion of his disease. Nothing helps my pain more than talking to my son about his. I have realized over time that while it can be very uncomfortable sharing about this, doing so relieves my pain. It is a selfish truth I share because I hope, while I cannot confirm, exhibiting compassion, discussing issues, developing coping strategies, sharing love and laughter and encouragement gives my body a break from the constant pain I suffer. I hope it helps him too. IDK but he calls and talks with me daily...God bless us all. Keep your spirit high:)