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Which advice would you give to someone who has just been diagnosed with Takayasus Arteritis?

See some advice from people with experience in Takayasus Arteritis to people who have just been diagnosed with Takayasus Arteritis

Takayasus Arteritis advice
9 answers
it will be ok......breathe!!! it gets better always but the first few years are by far the hardest

Posted Mar 29, 2017 by Megan 1000
Just breathe, take one day at the time and do Whats right for you.
Also remember that you Are not alone.
There is A facebook page called Takayasu. It has hjelped me alot when ive Been feeling down and alone.

And just remember that the only one who is going to decide what you should do or not do is YOU.

Posted Apr 16, 2017 by Audrina 800
I always say : we are a rare kinda gem" and we are......God's chosen us so we can bless many others with our experiences and challengers ....support from family and close friends is vital so one needs to understand this illness

Posted May 31, 2017 by Salosh 3601
Stay positive , consult doctor regularly, follow medication,mild exercise,stay happy

Posted Sep 10, 2017 by Vandanaa Suran 1700
it's experimental dealing with the treatment hang in there and be patient

Posted Sep 11, 2017 by Taylor 2650
go and make every thing you love

Posted May 17, 2018 by Noha nabil 900
Que busque grupos de Facebook o Instagram para conocer las experiencias de otros. Porque en cada caso es diferente y los abordajes también son distintos

Posted Sep 19, 2019 by Mónica Merlo 400
Translated from spanish Improve translation
Don't be sad or angry. Nothing you do with yourself to cry. Just faces that you have the disease and tries to lead a life similar to the one that you had before the disease

Posted Sep 2, 2017 by Angie Cortéz 3550
Translated from portuguese Improve translation
Control your emotional if I have to do therapy.
Living one day at a time.

Posted Sep 22, 2017 by Luciene 400

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Stories of Takayasus Arteritis

TAKAYASUS ARTERITIS STORIES
Takayasus Arteritis stories
I was diagonsed in 2010 but I think I had it many years before this, very crippling disease but continue fighting and trying to stay positive. great hospital and doctor support.
Takayasus Arteritis stories
  I just felt unwell with: fatigue, muscle aches, joint pain, slight fever. If the headaches became unbearable I went to doctor. The pain was on the bottom left side of the skull. Magnetic resonance imaging(MRI) was clean. I got the diagnosis in Ap...
Takayasus Arteritis stories
My 17 year old daughter was just recently diagnosed with TAK.  After seeing 3 doctors in 8 days for severe pain, finally took her to the ER where they ran the CT, diagnosed her with vasculitis and transferred us to children's hospital.  After multi...
Takayasus Arteritis stories
I Just know it 1 week. So there is less to tell jet. I find it hard to except on the moment.
Takayasus Arteritis stories
Hola a todos, mi nombre es Paola y fui detectada con TAK en julio de 2013 y desde entonces he estado en un viaje el cual unos días es maravilloso y otros no tanto, pero en el que día a día aprendo más de mi y de esa enfermedad.    Lo más dif...

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