What is the life expectancy of someone with Tarlov Cyst?

Life expectancy I'm sure isn't directly impacted by tarlov, but I'm sure with the amount of pain meds many sufferers are on could affect it.

Biggest impact is on quality of life directly from the cyst.

Aside from the surgery as treatment, it seems that most new studies and "advancements" are mostly still just linking symptoms and improvements of patients. Still seems to be a lot of trying to prove that the condition exists at this stage.

We have normal life-expectancy. If you have more than a few cysts, I suggest looking into root causes of them. One major factor in developing multiple tarlov cysts is connective tissue disease. I found out a few years after my TC diagnosis that I also have Ehlers-Dalos which directly caused mine.

Normal as with anyone else

Full Life Expectancy

I was diagnosed with Tarlov Cysts in 2007 after having gone through 7 excruciating months of Chiropractic care for what was diagnosed by x-rays only for subluxations of the spine. Finally an MRI was done in late 2007. Diagnosis was made for Tarlov Cysts which no doctor or specialist knew anything about. I was referred to a neurosurgeon in my state of KY. He declined seeing me saying they were not symptomatic and nothing could be done about them. Since my primary care doctor had never heard of them he was no help either. I was left to do research on the internet on my own for someone/anyone who knew about them. After a month of searching and reading and printing every article I could find on the internet, I chose the neurosurgeon I thought had the most experience and interest. Contact was made, tests were done, trips were made for initial visit and surgery was scheduled for 2008. Unfortunately the Dr.’s don’t like to publish their unsuccessful surgeries on public forums. I had the surgery, 3 month follow up MRI’s were done and New Yarlov’s were discovered higher up above the sacrum site of surgery. I have lived with this for 10+yrs. and have lost all muscle mass due to not being able to walk, sit, stand or bend or anything that requires movement. I am allergic to narcotic and most pain killers and am living on Tylenol Extra Strength. Hoping and praying I can find something new to help. Life is unbearable with an unsuccessful surgery. Please take my advice and try all available options you can find before you consider surgery. My primary care DR. is the same with no help and I am at the point of begging for another MRI. to see if anything can be done. If anyone has any advice who is living with this please reply. Thank you! Gloria

I was diagnosed 2 years ago, it is taking over my body but with help & advice i have decided to have it removed. So it depends on the help, procedures or surgery your willing to have

It does not determine life expectancy.

I think i have the same life expectancy as any other healthy person.

You can live with tarlov but it is painful

who knows ! the same as others

Im 19 years old and got diagnosed with tarlov cysts in my cervical spine in june. I dont know much about it but i have been getting cupping therapy done every 2 weeks for the past few months and that seems to be the only thing thats lessened the pain so far.

I don’t believe it shortens your life span. However some in my group have taken their lives because they can no longer deal with the pain.

Easy, when nature calls you from this world. These cysts can not kill you. I know of a lady in her late 80s with them.

I’m not sure, I don’t know the answer to this question.

Normal not effected

Tarlov Cysts are *Benign* - ie they are not life threatening.

Any severe pain condition can have an adverse affect in general health and mental health.

Some of the best information about TCs can be found on the “Tarlov Cyst Foundation” website.

TCs cannot be “removed” but can be surgically treated by one of the very few TC experts worldwide.

There are approx 3 TC experts in the USA + 3 in the UK + 1 in Germany. The world expert is Dr Frank Feigenbaum (USA) who also operates in Cyprus, Europe 2 or 3 times a year.

I think it depends of what is all linked to it ..most of us dont have TC but also Arachnoiditis or EDS and i have also chiari malformation...
The side effects of the many meds i take and the consequences all my diseases have on my life is very big...it will maybe not directly kill me but the question is how long are you willibg to live like this...
And pns dont say look for the small thibgs in life, i know that and try that but every day is a struggle to survive.. the joy in life is sometimes far away...

Life expectancy is just normal, however some patients are in so much pain that they are thinking of suicide or euthanasia. Therefore, doctors should be aware of this very serious painful condition.

If not supported by fysicians, one should seek help with support groups.

De levensverwachting hoeft niet korter te zijn dan gewoonlijk. Wel kan de pijn onhoudbaar worden als er geen goede pijnstilling behaald kan worden.

Tc's do not shorten your life span but they can greatly reduce your quality of life!

Is the same as other people