Advice of Usher Syndrome

I write. I have a blog where I write about my life with RP. (I have Usher's syndrome, so I actually write about my life as deafblind.) Writing is also recommended as: 1) Therapy for yourself 2) A way to inform others.

by Tina

i have a boyfriend who has rp. So i feel comfortable myself. we can understand each other.

by Yelda

Have great fun with dinners and glasses wines as Bourgondier

by Hilda Pruijs

I have a dog but is not guidedog

by Mabel

Sport, there is always something you can do.

by Vuerhard

spontaneity

by Velghe Carine

Study & work

by Rudo

I am using iodine eye drops

by Filip

never stop hoping

by nathalie

confidence

by lindsay

Mijn ouders staan altijd achter me

by Mauro

Live live to the fullness, don't let this disease overtake you!

by Albert

create noisyvision.org

by Dario

Love my two sons!

by Collin Eisema

Embrace it

by Paul

I love to shopping

by Anna

Writing and journaling keep me sane!

by Carrie Ann

Twitter to connect with other and staying up to date on the latest news in technology and research. You can find me @UsherEire

by Deborah Heffernan

Talking with other Usher people helps a lot

by Claire

making fun with friends

by Steve Van Nevele

Giving love, help and attention is very easy to do!

by Tim de Reuver

Finding a life goal that matters to me, to feel a sense of a meaningful life with or maybe thanks to Ushersyndrome

by Maartje

"Judge my personality, NEVER by my poor sight."

by James Clarke

Helping others.

by Emma

I worked and drove until I was 52. I like not working, but I'd take my eye sight back if I could!

by Cindy

Deaf Community

by Dirk

Rowan

by Simone Kramer

Be proud of who you are

by Sarah Reed

I'm unstoppable! Meaning that RP is NOT the reason why I should not participate or do certain things; With a good portion of fantasy I find my own way.

by Tina

Walk with my guidedogs make me relaxed

by Hilda Pruijs

I love myself

by Mabel

Embrace life, even when it knocks you off your feet.

by Vuerhard

fellow sufferers

by Velghe Carine

Love and positivity

by Rudo

I am regularly going to see my ophthalmologist

by Filip

help others

by lindsay

Ik volg ondanks het syndroom een onderwijsassistent opleiding

by Mauro