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Usher Syndrome
Advice
Advice of Usher Syndrome
i have a boyfriend who has rp. So i feel comfortable myself. we can understand each other.
by Yelda
Have great fun with dinners and glasses wines as Bourgondier
by Hilda Pruijs
I have a dog but is not guidedog
by Mabel
Sport, there is always something you can do.
by Vuerhard
spontaneity
by Velghe Carine
Study & work
by Rudo
I am using iodine eye drops
by Filip
never stop hoping
by nathalie
confidence
by lindsay
Live live to the fullness, don't let this disease overtake you!
by Albert
create noisyvision.org
by Dario
Love my two sons!
by Collin Eisema
Embrace it
by Paul
I love to shopping
by Anna
Writing and journaling keep me sane!
by Carrie Ann
Twitter to connect with other and staying up to date on the latest news in technology and research. You can find me @UsherEire
by Deborah Heffernan
Talking with other Usher people helps a lot
by Claire
making fun with friends
by Steve Van Nevele
Giving love, help and attention is very easy to do!
by Tim de Reuver
Finding a life goal that matters to me, to feel a sense of a meaningful life with or maybe thanks to Ushersyndrome
by Maartje
"Judge my personality, NEVER by my poor sight."
by James Clarke
Helping others.
by Emma
I worked and drove until I was 52. I like not working, but I'd take my eye sight back if I could!
by Cindy
Deaf Community
by Dirk
Rowan
by Simone Kramer
Be proud of who you are
by Sarah Reed
I'm unstoppable! Meaning that RP is NOT the reason why I should not participate or do certain things; With a good portion of fantasy I find my own way.
by Tina
Walk with my guidedogs make me relaxed
by Hilda Pruijs
I love myself
by Mabel
Embrace life, even when it knocks you off your feet.
by Vuerhard
fellow sufferers
by Velghe Carine
Love and positivity
by Rudo
I am regularly going to see my ophthalmologist
by Filip
help others
by lindsay
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