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Zavala2009's interview
How did all start?
I've had it all my life
Do you already have a diagnosis? How long did it take you to get it?
yes, I was diagnosed 2 years ago at the age of 31
For what medical specialties have you been treated? What has been the most useful specialty for your?
neurologist
What has been the most useful thing for you so far?
nothing really helps
What have been your biggest difficulties?
seeing at night, daily headaches, migraine, insomnia, anxiety
How has your social and family environment reacted? Have your social or family relationships changed?
no
What things have you stopped doing?
driving at night, being outside for a long time when it's sunny
What do you think about the future?
I dont know what to expect
So far, which years have been the best years in your life? What have you done during them?
teenage year, I had less anxiety and better social life
What would you like to do if you didn’t have your condition?
be outdoors more, take long road trips
If you had to describe your life in a sentence, what would it be?
complicated
Finally, what advice would you give to a person in a similar situation?
try to find help and support and don't give up