December 22, 2015 - I was diagnosed in March 2007 at age 55 after a routine blood test showed anemia, and follow-up tests found hyperviscosity syndrome. IgM was 62, which is 6200 in US units. Hematologist said I would need treatment in a matter of mo...
I was dxed with MGUS in 2008 by a nephrologist that I was referred to because of an e-GFR result. I progressed to Waldenstroms in 2014 after investigating my PN at MAYO. My PN is Anti-MAG. I was treated with Rituxan in January of 2015...
I was diagnosed nearly 3 years ago when a blood test for something else showed a high Igm. Had 2 rounds of Chemo (Velcade) and had some bad side effects. After a second opinion at the James Cancer Center in Columbus, Ohio it w...
spring 2014 sudden weight loss (2 stone) anaemic night sweats waekness;
doctors went down gastric route until heart started to fail: superb consultant asked for tests in jan 15;
even then had to spend a few months learning i had kidney cancer.
in ...
My husband was diagnosed with WM in mid 2014. He has been in the watchful waiting mode. At his last onc appointment he has been told he needs to start treatment. He has been trying to heal his body with nutrition and supplements and is terrified of c...
5 people with Waldenstrom Macroglobulinemia have taken the SF36 survey. Mean of Waldenstrom Macroglobulinemia is 2091 points (58 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey