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Which advice would you give to someone who has just been diagnosed with Wolff-Parkinson-White syndrome?

See some advice from people with experience in Wolff-Parkinson-White syndrome to people who have just been diagnosed with Wolff-Parkinson-White syndrome

Wolff-Parkinson-White syndrome advice
5 answers
I would say get several opinions before doing an ablation I've never had one I was born with this defect and have live my life without medications and I am 50 years old

Posted Apr 26, 2017 by Robin 1000
hastalığı kabullen ve yaşamaya devam et.
bu hastalık la yaşamayı öğrenirsen pek sorun çıkarmaz.
şehir hayatından uzak fazla yüksek olmayan bir dağ köyünde yaşayabilirsen hastalık aklına bile gelmez.
oksijen çok önemli.deniz seviyesinde sıcaktan nefes alamıyorsun.
fazla yükseğe çıkarsan bu defada oksijen yetersiz geliyor.
deniz seviyesinden 1200 ila 1800 metre yüksekte ideal bir yaşam sürebilirsin.
sıcaktan uzak dur.25 derecenin üzerinde sıcakta dışarıda gezme.
duş alırken bile ılık suyla al.sıcak sudan uzak durki kalp çarpıntın olmasın.

Posted Jul 27, 2017 by MURAT TÜRK 1750
Seek out comfort from friends and family. Join groups online with others that share your syndrome.

Posted Sep 20, 2017 by Amy 1350
Its not the end of the world. Nothings gonna change. Just be careful not put extra stress on your heart.

Posted Jan 22, 2018 by Len 1200
My dad was diagnosed with Parkinson’s disease.his symptoms were shuffling of feet,slurred speech,degradation of hand writing, horrible driving skills, right arm held at 46 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure from ULTIMATE LIFE CLINIC, he now walks properly and all symptoms has reversed, he was having trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which really helped him a lot,the biggest helped we had was ultimate life clinic they walked him through the proper steps,i recommended this http://www.ultimatelifeclinic.com to anyone who also needs help.

Posted Aug 25, 2021 by matina 2610

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Stories of Wolff-Parkinson-White syndrome

WOLFF-PARKINSON-WHITE SYNDROME STORIES
Wolff-Parkinson-White syndrome stories
I was born in 2014 at 26 weeks weighing 630g.  I had 1 episode of SVT and diagnosed with WPW in August 2014 and have been on propranolol ever since.  If anyone can help my mummy and daddy understand this disease better and what it's like living wi...
Wolff-Parkinson-White syndrome stories
One day i was going to college when my heart started beating too fast. I didn't understand anything and I was terrified. I went to a clinic, they diagnosed  me to tell me that I was born with a very rare syndrome, and it's going to affect my life, ...
Wolff-Parkinson-White syndrome stories
I HAD NO IDEA THAT I HAD WPW UNTIL I WOKE UP IN HOSPITAL AND WAS TOLD THAT I HAD IT . I HAD 2 MASSIVE HEART ATTACKS APPARENTLY DIED TWICE GOT PUT INTO A COMA WHILE I WAS IN THE COMA I WAS GIVEN A 10% CHANCE THAT I WOULD COME OUT OF IT. THEY SAID IF ...
Wolff-Parkinson-White syndrome stories
About 10 years ago, I was diagnosed with WPW. Had the surgery within a year to correct it, and have been symptom free ever since.
Wolff-Parkinson-White syndrome stories
when I was 18 days old I wasn't feeding very well so mummy took me to the doctors the next day at 19 days, we saw a locum doctor who said I had oral thrush which is why I wasn't feeding. On the day I turned 20 days old I started making a grunting noi...

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Wolff-Parkinson-White syndrome forum

WOLFF-PARKINSON-WHITE SYNDROME FORUM
Wolff-Parkinson-White syndrome forum
I went to the hospital yesterday for my review of ecg, heart scan and 24 hour monitor results as in March I was admitted to a&e for being dehydrated in pregnancy. Im currently 24 weeks pregnant with my first and have now been diagnosed with this ...

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