Only there is more information on this disease and this helps the early detection without the patient suffered a long time the symptoms putting them quickly its proper dosage and its routine controls. In terms of progress.... I've been many, many years with this disease and there is great progress, we are very few those who suffer and do not come out very profitable. We have been stuck for many years. ( It is my personal opinion).
there are not many developments since it is an uncommon disease, the only thing you will find is information about the treatment and in many cases even physicians themselves are unaware of it.
Slumping into a chair I lamented to my father, ‘I feel like my life is hanging on a thin strand that could break at any moment.’ It was late October, 1980.
How, in a matter of months, did a formerly healthy, animated career woman of thir...
I was 16 years old and off roading with a four wheeler motor bike. We went up a steep incline and I fell off the back of the bike and broke my fall with my head. I cracked my skull, thus leading to brain swelling and brain injuries. To cut a long sto...
It took 9 months before the doctors new what was wrong with me and then i nearly died ,trying to learn to live with Addision and it is not easy i am so tired and depressed and in pain ,find it very hard to do any thing
My son was diagnosed with POMC before his 2nd birthday in 2010.
As far as we know he is the only one in the USA but we are looking. because I have created POMC Island I have been contacted by 3 other families.http://www.facebook.com/P.O.M.C.Island
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