Question - Hereditary Angioedema
Patient Perspective on Treatment
ResearcherHi Everyone,
I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment free of cost by anyone? Do you get reimbursed for any or all HAE treatments? Do you feel that services offered with the treatment are meeting your needs or do you rely on advocacy groups for support? Are there any needs that are not being met at the moment? Are there any programs that you feel are useful to you?
Thanks so much!
Hi !
My english isn't good but i'll try to do my Best. First of all, in which city do you live ? If you are in Canada, I can help you. If you are in U.S, I can give you the name of someone Who's living with this disease and have treatment in Texas. So I will Come back to help you to find answers.
Maggy
Hi Maggy,
I am in the US and would love to get in touch with the person in Texas. I'd also like to hear you perspective and make a comparison between the US and Canada.
Thank You!
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