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What is the life expectancy of someone with Hereditary Angioedema?

Life expectancy of people with Hereditary Angioedema and recent progresses and researches in Hereditary Angioedema

Hereditary Angioedema life expectancy
7 answers
unknown. Dyax drug (now Shire) in Phase 3 trials.

Posted Mar 15, 2017 by Jennifer 1150
We can't lead a thrill seeking risk taking life. But with the all the recent therapies available we can have a good life. I was on danazol from 1980 to 2012 and it has done damage to my body that I will never recover from. So I'm so grateful to cynrize, kalbitor and berinert that I no longer have to take danazol.

Posted Apr 27, 2017 by Mary Helen 1400
I don't know.

Posted Apr 28, 2017 by Nikki 1150
With treatment one can hope for a long life however the throats swelling can be fatal

Posted May 23, 2017 by Donna 2250
Normal life expectancie.. HAE can only cause death with a lyranix swell.

Posted Nov 29, 2017 by [email protected] 2300
75% mortality by 36 yrs old

Posted Apr 7, 2018 by Chuck 250
Translated from spanish Improve translation
The risk of life of a person with hereditary angioedema is due to the risk of inflammation of the glottis without the proper medication can end in death.
With proper medication should not be complications the average life of the normal for that country.

Posted Feb 23, 2017 by Mary 1161

Hereditary Angioedema life expectancy

Celebrities with Hereditary Angioedema

Celebrities with Hereditary Angioedema

1 answer
Is Hereditary Angioedema hereditary?

Is Hereditary Angioedema hereditary?

6 answers
Is Hereditary Angioedema contagious?

Is Hereditary Angioedema contagious?

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ICD9 and ICD10 codes of Hereditary Angioedema

ICD10 code of Hereditary Angioedema and ICD9 code

4 answers
Natural treatment of Hereditary Angioedema

Is there any natural treatment for Hereditary Angioedema?

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Living with Hereditary Angioedema

Living with Hereditary Angioedema. How to live with Hereditary Angioedema?

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Hereditary Angioedema diet

Hereditary Angioedema diet. Is there a diet which improves the quality of l...

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History of Hereditary Angioedema

What is the history of Hereditary Angioedema?

3 answers

World map of Hereditary Angioedema

Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.

Stories of Hereditary Angioedema

HEREDITARY ANGIOEDEMA STORIES
Hereditary Angioedema stories
Mine started in 2009 with my first swell, it was my lips and cheek. That is the same time the ucartia started also. It took my Dr. 5 years to find something to help me control and survive my Angioedema. I never knew how bad this could be till I was d...
Hereditary Angioedema stories
Desde niño tuve que soportar los diversos episodios de AEH sin saberlo, pasando de medico en medico con diversidad de diagnosticos y ordenes de cirugias innecesarias, gracias a Dios no acudi a ninguna. Fue hace tres años que optuve el diagnostico r...
Hereditary Angioedema stories
My earliest memory of HAE symptoms was when I was about 6 or 7.  I would occasionally get the abdomen swelling, be sick and sweating all day, then I would finally vomit and then feel better, go to sleep and be better the next morning.  I consider m...
Hereditary Angioedema stories
I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014. My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next reme...
Hereditary Angioedema stories
i was dx in 2008 with my first fasel swell . im hae type 2 . im co founder of the facebook group ( https://www.facebook.com/groups/156649074393978/ )

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Hereditary Angioedema forum

HEREDITARY ANGIOEDEMA FORUM
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi Everyone, I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment fre...
Hereditary Angioedema forum
Hi Everyone, I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to ...
Hereditary Angioedema forum
Hi All, For those of you currently (or in the past) taking Cinryze, Firazyr, or Kalbitor, has Shire always paid for your co-pays through the co-pay assistance program or was there a limit to how much they paid? I've also heard that the case managers...

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