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Living with Hereditary Angioedema. How to live with Hereditary Angioedema?
Can you be happy living with Hereditary Angioedema? What do you have to do to be happy with Hereditary Angioedema? Living with Hereditary Angioedema can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Hereditary Angioedema
be proactive in treatment and regimen
Posted Mar 15, 2017 by Jennifer 1150
First of all you need a great support system. And remember that although a family member may tell you they aren't as tired of the disease as you are in truth they probably are. Second you need a knowledgeable doctor they will become your most important alliance in this fight. Third and last you have to be able to ask for help when needed. Because you will have days you feel you can climb a mountain and days when you can lift and arm without a lot of effort.
Posted Apr 27, 2017 by Mary Helen 1400
You have to learn to deal with what God gave you through medical treatments and good support systems.
Posted Apr 28, 2017 by Nikki 1150
It is possible to live a happy life despite living with HAE - it's all in the attitude. Smile ! A positive attitude goes a long way
Posted May 23, 2017 by Donna 2250
With modern preventive drugs I live a somewhat normal life
Posted Nov 29, 2017 by [email protected] 2300
If I am being honest, this is something that I struggle with. The best advice I can give, and also try to take for myself, is to accept your life for what it is. This is who we are; our HAE does not have to define us, but it is a part of us, and we need to be able to accept that. It’s very easy to get down on yourself, especially after an attack, on feeling like this isn’t fair. But, it is who we are, and it’s not going anywhere. It’s not easy to live a normal, happy life struggling with the difficulties of HAE, but what is the alternative? This is the one life we get, and although it may not be as ideal as you’d like, it’s still your life. We need to find a way to become more than just our HAE.
Posted Jul 10, 2018 by Alex 400
Translated from spanish
Improve translation
You can be happy but you need to be diagnosed and to have the necessary medication in order to lead a life as normal as possible.
Posted Feb 23, 2017 by Mary 1161
