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Can people with Hereditary Angioedema work? What kind of work can they perform?
See how people with experience in Hereditary Angioedema give their opinion about whether people with Hereditary Angioedema can work and what kind of jobs are more appropriated for people with Hereditary Angioedema
The people with Hereditary Angioedema who are able to work if their attacks are infrequent and/or mild. They work in a number of professions, some are nurses, some are doctors, some work as managers, secretaries, information technology, etc.
There is no research that details type of work done by people with this disease, so information is anecdotal.
There is no research that details type of work done by people with this disease, so information is anecdotal.
Posted Feb 22, 2017 by Teresa Scruton 300
Some can and others can't because of frequent attacks.
Posted Feb 27, 2017 by Zoie 300
Yes. Heavy lifting is not recommended.
Posted Mar 15, 2017 by Jennifer 1150
No unfortunately. Employers are reluctant to hire someone who may be absent six to ten days a month.
Posted Apr 27, 2017 by Mary Helen 1400
Absolutely, it should not limit a person's ability to work
Posted Apr 28, 2017 by Nikki 1150
Some people with mild symptoms can work. This disease has wide variants so it depends on each individual person
Posted May 23, 2017 by Donna 2250
Yes.... I have worked my whole life from age 12... I was not limited to what I could do as long as I was not having a attack
Posted Nov 29, 2017 by [email protected] 2300
I do not think people with HAE can work in any field. I think finding work is the most challenging and frustrating part of living with this disease. Speaking from experience, I have been fired from *countless* jobs due to absences, and for a long time I took that very personally. When I was getting really sick, I even went on disability. I was fortunate enough to find a job that works with me and my attendance to make it work. It took a long time and a lot of hard work to get here, but I was able to find a business that we’re willing to take my absences out of the equation, and judge my work performance solely on the days that I was there and feeling healthy. I know personally, where I work now is open 7 days a week, and I get two of those days off. This gives me scheduling flexibility, for example if my day off was Wednesday, but I’m sick on a Monday, I am able to just use Monday as my day off, and go into work on Wednesday. I do not think people with HAE would be able to work in a field that are only open Monday- Friday. It limits them if they get sick on a weekday, because they won’t have the option to make up that time since the business doesn’t have operating hours Saturday and Sunday. I would guess maybe 25-35% of HAE patients are able to work in any field. However, it does depend on the severity and frequency that person gets their attacks.
Posted Jul 10, 2018 by Alex 400
Translated from spanish
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Depends on the severity of the symptoms, when they appear the episodes you feel pain, discomfort, and tired. Therefore these days you can't work.
Posted Feb 23, 2017 by Mary 1161
