Story about Antiphospholipid / Hughes Syndrome .

I have WHAT?

Jul 25, 2017

By: Crystal


I am 37yrs old and had my first stroke at the age of 21. I was perfectly healthy, played sports, ate healthy and lived a normal life. Two weeks before my stroke I was in a car wreck. My doctors seem to think that I had a blood clot that traveled from my leg and was jarred by the wreck. These doctors sent my blood off all over the world to try to figure out what was going on. That's when they found out my life would forever change. Since then I have had 6 strokes and multiple TIAs and live everyday with chronic pain. I hate Hughes Syndrome. I look normal and not many know or understand this illness and seem to think it's not that bad or can be faked when in fact there is no cure and anybody who has this would do anything to not have to live with this.

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