Story about Antiphospholipid / Hughes Syndrome .

My diagnosis blessing

Oct 18, 2017

Year Condition Began: 2002


I was a newlywed and suddenly in extreme pain in the middle of the night. My husband took me to the local small ER thinking it had to be kidney stones because of the location of my pain and the fact that he had seen his Dad go through them. I don’t recall much from that night other than the ER doctor said it was a blood clot in my kidneys and I was going to lose a kidney. They then transported me to the main hospital where I could see a nephrologist. He said they could treat me without losing my kidney and that the ER doctor was an idiot lol.
After tons of blood work in the hospital the preliminary test showed APS. Of course I had no idea what it was about until a Hematologist/Oncologist that I worked for at the local Oncology clinic came into my hospital room. My husband was freaking out and didn’t understand that he wasn’t just a “cancer doctor” and that he had other specialities. So after a week in the hospital they released me and then I was able to see my Hematologist while I was at work. Very nice convenience! After several repeat tests he confirmed I did have APS. Stayed on Warfarin until I discovered I was accidentally pregnant and immediately switched to Lovenox injections. Ultra sounds and testing by High Risk OB said everything looked great for our baby. I had been pregnant for 7 weeks before I switched to lovenox so it was a blessing that we didn’t have to face any developmental issues with the baby. She is now 8 years old and very healthy. I haven’t had any clots since the first one in 2002. I remain on Warfarin for life. I have been on Plexus Triplex combo of supplements for almost 4 years and it helps me with so many health issues that may/may not have been symptoms of APS. I am thankful I don’t have any major symptoms or clots like so many suffer with in APS.

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