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Which advice would you give to someone who has just been diagnosed with Aortic Dissection?
See some advice from people with experience in Aortic Dissection to people who have just been diagnosed with Aortic Dissection
Hang in there. Do not give up. It will be better after 1st and 2nd year. Find others who experienced the same. Meet them in real life. You are not alone. We are all the same. You are still here for a reason. It was not your turn to go yet. Learn as much as you can about AD. It will help keep you alive. Many docotrs in local hopitals have very low knowledge about our rare aortic diseases.
Posted Mar 29, 2017 by Timo Söderlund 6072
Keep your blood pressure below 120 systolic and find a great surgery team that understands aortic dissection.
Posted Jul 12, 2017 by Errol 1650
Dringend kompetente Gefäßchirurgen und Kardiologen finden. Kontakt zu Betroffenen Menschen bspw. mit einer Selbsthilfegruppe aufnehmen. Mittlerweile findet man in Deutschland Informationen und Adressen im Internet.
Aber Achtung - es gibt nach wie vor viel Unwissen auch bei Kardiologen und Krankenhäuser. Darum ist es wichtig nach Möglichkeit vorab zu recherchieren.
Aber Achtung - es gibt nach wie vor viel Unwissen auch bei Kardiologen und Krankenhäuser. Darum ist es wichtig nach Möglichkeit vorab zu recherchieren.
Posted Sep 11, 2017 by Regina 802
Take things easy, listen to your body it's your best friend and will tell you if it needs help.
Talk to someone about your fears.
Try to be positive and take on a good persona as being sad will bring you down.
Depression is one of the most common and disabling of all after affects, be mindful of a family member needing help as they will not know themselves.
Be proactive in your own care by finding out as much as you can about your condition because the unfortunate fact is that most general practitioners although helpful will not have the best understanding of Aortic Dissection.
Keep a notebook so you can write questions down and take the to to your appointments.
The most frustrating thing is to come out thinking I never asked about????
Take each day with a smile and consider that it could be a lot worse no matter how bad you think your day is.
Hug your friends and family x
Talk to someone about your fears.
Try to be positive and take on a good persona as being sad will bring you down.
Depression is one of the most common and disabling of all after affects, be mindful of a family member needing help as they will not know themselves.
Be proactive in your own care by finding out as much as you can about your condition because the unfortunate fact is that most general practitioners although helpful will not have the best understanding of Aortic Dissection.
Keep a notebook so you can write questions down and take the to to your appointments.
The most frustrating thing is to come out thinking I never asked about????
Take each day with a smile and consider that it could be a lot worse no matter how bad you think your day is.
Hug your friends and family x
Posted Sep 11, 2017 by Dan 1998
LEARN READ EDUCATE yourself FOR yourself
Posted Sep 22, 2017 by Jim 5641
You will feel better but patience will be a key virtue and you need to determine your level of progress by being very sensible and using the support of others around you
Posted Sep 23, 2017 by Christine 1400
Be strong and seek support from the very good groups around especially social media
Posted Feb 3, 2018 by Lindsay McKinney 2520
Rely on the doctors, you are in good hands. You might feel that you never will be OK again, but you will. This to shall pass <3
Posted Feb 10, 2018 by Marvinskan 1100
Remember that AD is very individual. What you read most likely does not apply to you.
Posted Jun 3, 2018 by Jeppe 2300
Followed by cardiologist . Blood work and 6 mth ct scans
My situation was different. I dissected quickly. Very lucky I live close,to hospital
My situation was different. I dissected quickly. Very lucky I live close,to hospital
Posted Jun 6, 2018 by Karhleenmc 800
If you're not already there, get yourself to hospital and let the doctors do their job. They know their stuff and you will come out alive at the other end. Your loved ones will not lose you. You will be there for them.
Posted Sep 23, 2018 by Stefan 2500
Have hope some do survive. Seek counseling and join a Facebook group on Aortic Dissection. Research the condition the doctors won’t tell you what’s going on. Keep living. Love all and tell them so. Prepare financially for being unable to work for two years. Discuss with your parter fears and queries about the condition. It is overwhelming always have someone with you at appointments to hear all the information and discuss afterwards so you both understand all that’s said.
Posted Nov 7, 2018 by Sean 900
Take it easy and in the beginning follow the doctors orders, start walking
Posted Mar 12, 2019 by Bengt 2500
Keep your chin up. It's a long road.
Posted May 13, 2019 by Chris 1600
I would tell them to not dwell on their condition, but at the same time, to listen to those in the medical field as to how often they should be checked. After tests are done, to live life as fully as possible. I was given this advice and I don’t think I would have done anything differently. Sure, when my yearly CAT scan came up, there was always some worry, but it became less after years go by.
Posted Oct 9, 2019 by Sandy 2500
Important to have immediate surgery, no time to lose!
Posted May 26, 2020 by Arne 2300
Get the surgery as soon as possible.
Posted Apr 2, 2022 by Larry 2550
