Living with Aspergillosis. How to live with Aspergillosis?

Can you be happy living with Aspergillosis? What do you have to do to be happy with Aspergillosis? Living with Aspergillosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Aspergillosis

Living with Aspergillosis
11 answers
you need to have appositive outlook on life you wont always feel as bad and just make sure you don't sweat the small stuff

Posted Sep 11, 2017 by Michele 2656
Even though when unwell you might feel like you will never recover and it can take several weeks, if not months to be well enough to exercise and be fully active, you just need to take it day by day and stay calm. You also need to adapt your lifestyle to have the best health outcomes. ( Eg I was a frequent traveller in Africa for many years. where there is a lack of medical facilities and virtually no pathology labs with reliable results, and a lot of fake medicines, ( With the exception of South Africa,) I have not returned since 2015.

Posted Oct 18, 2017 by Peta 3110
Of course you can be happy with aspergillosis, happiness is a state of mind not a state of health. Keep a positive attitude, recognize the hand of cards you have been dealt and aim to win. Keep looking forward.

Posted Oct 18, 2017 by Vaughan 2500
It is definitely best to have a happiness protocol going in your life before you come down with this condition because it can drastically alter and change your life it may be a very big adjustment which can cause depression and despondency toward life without that backup ability to find happiness and meaningful fullness in your new life with this condition. For me it meant my whole life changed I was a very physical person who like to hike and fish and be outside I gardened and did many other things. Having a lung condition that changes your physical condition so much means that you have to change what you like to do as you can no longer do the things you used to do that can be a very complicated challenge. For a Time I decided to try knitting actually made anything of value but I kept my hands busy and felt like I was doing something I also learned a foreign language. It is a great deal like that song you may not get what you want but you can get what you need if you are willing to have an open mind.

Posted Oct 21, 2017 by Boni 1450
Depends on the severity and the type you would have.
some dont know they have it, some are fine with mild treatments, some cope with stronger longer term treatments
longer term treatments also have side effects however mild treatments are easier to handle

Posted Nov 9, 2017 by Sam 2500
Live life to to the full don’t get bogged with the syndrome laugh lots and be happy. Evaware of yourself and emotions socialise as much as you can.

Posted Aug 14, 2018 by StuartMcKelvie 4050
To live with this, it is VERY important to have a mold free environment. I would HIGHLY recommend hard wood floors. Clothing, bedding, furniture should always be clean, dry, and free of dust, dirt, and mold. If you have a pet be especially careful breathing in the dander and keep pet hair at a minimum. If you have air conditioners and furnaces keep them serviced at least twice a year if you can afford to do so. Keep the heaters and ac in your car as free of allergens as you can. When cleaning, use a face mask. Eat healthy foods, and try to get fresh air when you can. Take your meds that your doctors prescribe, and maintain your checkups. Read positive books if you can, and do not isolate from people! Do not smoke!

Posted Aug 8, 2019 by Patricia Fletcher 2500
Do what you can when you can, don't overdo things on good days, network with other people regularly.

Take your medication as directed, report back any new symptoms quickly.

The National Aspergillosis Centre supports large and active communities on Facebook at https://www.facebook.com/groups/aspergillussupport - they are well worth joining.

Posted Oct 16, 2019 by GAtherton 3100
gain an understanding of the condition - listen to your body - do more on good days, rest on bad ones. Find support from others with the condition and hospital staff

Posted Oct 17, 2019 by Linda Galbraith 2500
I don't think you're actually happy to know you have Aspergillosis.
I think you have to accept it.
To with through the fear that comes up, by using things such as meditation or counceling.
I think you also live with the hope that it will actually go away.

Posted Oct 19, 2019 by Pam Mars 2500
Follow doctors instructions, live a clean, healthy lifestyle. Be positive.

Posted Feb 15, 2020 by Dayna 1700

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Had right upper lobe removed due to a Aspergilloma Continued to be poorly and eventually refereed to Professor Denning at Wythenshaw who diagnosed me after various tests. Started first anti fungal treatment Itraconazole which after 8 months st...
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I think I developed ABPA after I emptied a compost maker that was not doing the job. Got a great lungful of dust. Came back from a trip coughing. Had to work trip to Philippines coming up. My GP thought I had walking pnuemonia and I went with AB's...
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I was exposed to Aspergillus Mold (and perhaps other strains as well) during the course of work as a Registered Nurse for the Dept. of Veterans Affairs in Texas. Although an asthmatic during childhood, mostly provoked by contact in allergens; I did ...
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In 2007 had granulomas removed from right lung due to sarcoidosis, had chest infections on and off for years. Have been asthmatic since young child, in 2016 found my breathlessness was getting worse. After chest X-rays CTscans and blood tests diagnos...
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I was diagnosed with ABPA in 1986. I was 34 and had been coughing up blood. my Gp sent me for a sputum test and so on, and ABPA was diagnosed. I felt very unwell, tired and thought I was nearly dead. I didn't want to take steroids as I thought they ...

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