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Does Beckwith-Wiedemann Syndrome have a cure?

Here you can see if Beckwith-Wiedemann Syndrome has a cure or not yet. If there is no cure yet, is Beckwith-Wiedemann Syndrome chronic? Will a cure soon be discovered?

Beckwith-Wiedemann Syndrome cure
2 answers
No. I don't think seeking a cure is necessarily a viable option. Prevention may be a path in the future, but not at this current time.
Posted May 19, 2017 by Megan 1220
No but their are many different things that they can do to make a BWS live a perfectly normal life
Posted Jan 20, 2020 by DMSmith 1550

Beckwith-Wiedemann Syndrome cure

Beckwith-Wiedemann Syndrome life expectancy

What is the life expectancy of someone with Beckwith-Wiedemann Syndrome?

3 answers
Celebrities with Beckwith-Wiedemann Syndrome

Celebrities with Beckwith-Wiedemann Syndrome

1 answer
Is Beckwith-Wiedemann Syndrome hereditary?

Is Beckwith-Wiedemann Syndrome hereditary?

4 answers
Is Beckwith-Wiedemann Syndrome contagious?

Is Beckwith-Wiedemann Syndrome contagious?

4 answers
ICD9 and ICD10 codes of Beckwith-Wiedemann Syndrome

ICD10 code of Beckwith-Wiedemann Syndrome and ICD9 code

2 answers
Natural treatment of Beckwith-Wiedemann Syndrome

Is there any natural treatment for Beckwith-Wiedemann Syndrome?

2 answers
Living with Beckwith-Wiedemann Syndrome

Living with Beckwith-Wiedemann Syndrome. How to live with Beckwith-Wiedeman...

2 answers
Beckwith-Wiedemann Syndrome diet

Beckwith-Wiedemann Syndrome diet. Is there a diet which improves the qualit...

3 answers

World map of Beckwith-Wiedemann Syndrome

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Stories of Beckwith-Wiedemann Syndrome

BECKWITH-WIEDEMANN SYNDROME STORIES
Beckwith-Wiedemann Syndrome stories
TINA'S STORY
I also have fraternal twin sons (b. 2007) who both have BWS. All the of us have had tongue reductions and have gone through tumor screenings. Only one of us currently has issues with hemihypertrophy. Feel free to ask me any questions you might have....
Beckwith-Wiedemann Syndrome stories
MY DAUGHTER BAILEE
My daughter Bailee was born November 2014, she has Beckwith-Weidemann Syndrome, Full left sided Hemihypertrophy, and Congenital Junctional Ectopic Tachycardia. 
Beckwith-Wiedemann Syndrome stories
CASON
Cason was prenatally diagnosed with an omphalocele containing only bowel and an adrenal hematoma at 18 weeks. We had an amniocentesis done at 20 weeks and it showed no abnormalities. He measured very large for gestational age and always had his tongu...
Beckwith-Wiedemann Syndrome stories
TAMMY THOMAS'S STORY
My daughter was born with BWS hemi in August 1992. 5 1/2 weeks in NICU due to very low blood sugar. Took out 95% of her pancreas and she has had normal levels ever since. Surgeries later for tonsils/adenoids removal, 2 for lazy eye, stopped bone grow...
Beckwith-Wiedemann Syndrome stories
POLAM'S STORY
3 year old daughter with BWS and HI

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Beckwith-Wiedemann Syndrome forum

BECKWITH-WIEDEMANN SYNDROME FORUM
Beckwith-Wiedemann Syndrome forum
SINDROME DI RUSSELL SILVER

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